Special Education Advocacy with Ashley Barlow

Today we wrap up the COPAA series with a really great conversation with David Jefferson, the President of the Board of Directors. David's journey to advocacy from the corporate world is super interesting and relatable, and you'll learn how he built a large advocacy business in a few short years. David's got a heart for advocacy - and the right tools to get results for his clients. If you've ever thought about advocacy, this episode is for you!!!!

Transcript: https://share.descript.com/view/k7Y2sB9pQMo

David Jefferson (Arizona) -  As a parent of special needs children, David understands and appreciates all of the difficulties parent’s face as they try and navigate the special education maze.  David formed Parent Support Arizona to ensure parents have a local resource and the tools they need to ensure their children’s educational needs are met. Over the past few years, David has sought administrative remedies through the State Department of Education, Office of Administrative Hearings OCR and FERPA.  David uses these experiences to provide civil rights advocacy, educational advocacy, parent training and represent parents in IDEA due process hearings in the State of Arizona.  In addition he offers self-help tools and resources that allow parents to advocate for themselves and on an equal footing with schools as they advocate for their children’s rights.

If you've ever wanted to crawl inside my brain to have a conversation on special education advocacy, law, and practice, here's your chance. Amy Bonn, consulting attorney, with COPAA, speaks. my. language. Amy and I have a hearty conversation about our jobs as special education attorneys, and it's just too good! Sometimes while I record with guests, I write down the time that a particular quote happens or a quote itself. I had to stop writing on this one, because I'd filled two big Post Its!!!! Tune in for All Things SPED Law and Advocacy today!

Transcript: https://share.descript.com/view/LBuZb8GKRdH

Amy Bonn, Esq. - Amy is a Nebraska attorney providing legal representation to families of children with disabilities in special education matters. Amy is a summa cum laude graduate of Creighton University School of Law, where she was a member of the board of editors of the Creighton Law Review. She is licensed to practice in state and federal courts in Nebraska.

Amy is also a proud parent of children with developmental disabilities. She completed a ten-month traineeship in disability advocacy and leadership at the University Center for Excellence in Developmental Disabilities at the Munroe-Meyer Institute, University of Nebraska Medical Center, where her research focus was on parental advocacy in special education.

Today we roll out a new series on the podcast called COPAA Conversations by chatting with Denise Marshall, the CEO of the Council of Parents, Attorneys, and Advocates. COPAA’s mission is to protect and enforce the legal and civil rights of students with disabilities and their families. The organization offers trainings, an amazing conference, public policy work, legal assistance, really effective committees, and more! It's seriously my one-stop shop for information and community in my work. Denise and I chat about all things COPAA in this episode, and of course, we dive into some of our favorite advocacy tools and ideas! I hope you'll join us and check out COPAA!

Transcript: https://share.descript.com/view/Tx38ehX5c7M

Denise Stile Marshall, M.S. -  Denise has led the Council of Parent Attorneys and Advocates (COPAA) since 2005. She  graduated from Johns Hopkins University with a Master of Science in Applied Behavioral Science. Denise has over 40 years’ experience in the field of disabilities in a variety of support, management, and advocacy capacities. She has a wealth of non-profit association management experience and is a dynamic trainer, experienced in leading sessions for participants of diverse abilities and experience levels. Prior to becoming the CEO of COPAA Denise was the Director of Training and Educational Outreach for the national organization TASH from 1995-2005, the Program Manager and trainer for Maryland Leaders in Disability Policy; and a Positive Behavior Support specialist and Director of the National Training Center for The Kennedy Krieger Institute in Maryland among other consulting and management positions.  Denise's specific areas of interest are civil right to quality education, positive behavioral supports, prevention and reduction in the use of restraints, abolishment of seclusion and aversive techniques, family supports, grassroots advocacy, self-advocacy, and experiential learning.  Denise and her husband are the parents of two children and have three grandchildren, one of whom has Down syndrome.

Ever feel like you need to up the ante on your Negotiation but feel stuck in how to do that? How about a tool that psychologists use to help people get to the root of their own struggles? In today's episode we're going to dive a little deeper into a concept I call "Tactical Empathy," and we'll work on validating the emotions of all of the people at the IEP table. For some people this is super intuitive. For others it isn't, which is okay, because there are a few things you can do to change the vibe of a meeting in a snap!!!

Transcript: https://share.descript.com/view/8sQAp7hltLn

We've all been there. The IEP Meeting is going well. Everyone is smiling, the computer system is working, the child is making progress. Then... (record scratch)... things go sideways. In today's episode I talk about one common IEP Pitfall, and it's so obvious. Fortunately, the solution is also super obvious and easy, so I'll walk you through that, too! This is an easy, quick listen before your annual IEP Meeting! Like stuff like this? Consider joining our ABC Course where you get my Negotiation Workshop exclusively!

One of my most favorite and successful strategies has very little to do with negotiation strategy. Rather, it is founded in a desire to make meetings as efficient as possible... but it has a huge positive impact. In today's episode I share my tried and true strategy of requesting a draft of an IEP prior to the meeting and then submitting written questions, comments, and ideas back to the school team prior to the meeting. This strategy was meant to simply be efficient, but it has had a huge impact of IEP meetings for me. I hope you find it helpful, too!

I talk to about one professional a week about an Inclusion case. Attorneys, advocates, outpatient therapists, social workers, pediatricians, and so many other professionals have questions about Inclusion. I'm not only honored that these colleagues call me, but I'm also always excited to geek out about Inclusion and to provide my insight. The only group of folks that I consistently disappoint is the attorneys. Why? Because my approach to inclusion cases is really hands-on. It's practical. It's communicative. It's sometimes even messy. In today's episode, I'll give you some of the practical tips that I've dished out to some of my friends in the last few weeks.

I like to say that the "heart and soul" of special education is the specially designed instruction. This is the instruction that is supposed to be uniquely tailored to the child's needs. This should be drastically different from the accommodations and modifications that students on IEPs get in their general education classrooms and other environments at school. When I recently spoke on Specially Designed Instruction to parents, attorneys, and advocates, I got a ton of questions:

• What's the difference between SDI and Tier 1 / whole group instruction.
• Is SDI the same as modifying work?
• Is SDI like tutoring?
• Where does SDI occur?

Let's dive into these questions in today's episode.

Transcript: https://share.descript.com/view/9ZF4KwqNrV4

Oh, the emails I got! I posted about IEEs in my stories a few weeks ago, and I got so many messages from professionals asking about them. I took those questions as a sign that we needed to spend a second more on IEEs here on the pod. So, let's take a step backwards and hammer in on a few basics on Individual Education Evaluations. Fact One: They're free. Fact Two: They're intended to level the playing field for parents in special education. Now that I have you attention, tune in to the whole episode for more!!!!

Transcript: https://share.descript.com/view/Mnj8VduBVK7

Last week I attended the COPAA Conference, and a session on IEEs, presented by esteemed VA SPED attorney, Melissa Waugh, I had an epiphany about cognitive testing. Many of my clients that have kids with Down syndrome and other intellectual and developmental disabilities shy away from cognitive/ IQ testing. In this episode, we'll ponder (yet another) reason why this may not be a great idea. I promise to invite Melissa to be on the pod, too, because man alive, she's a wealth of information!