Alz In The Fam

More Love From NYC

An ode to NYC, written and spoken by Allan Fair. Taking over my Mental Health and Alzheimer's related podcast with this special 9/11/21 post.  #NeverForget #SpokenWord #9/11 #MentalHealth

Been here since '98

.com boomin’

City is moving

Used to see Dicaprio at a club called Life

He’d be groovin

But that was a different life

Y2K came and went

.com bust Web 1.0 descent

Twin Towers down

Shout from the wreckage

WE HEAR YOU!

And the city echoed back

And rebuilt our hearts, and bodies and buildings

New generations, new city children

New wars, new fears, far away, but the soul of the city, always here

Eli to Tyreee

Ohhhhhh-baby...Victory

Great Recession of 2008

SARS, Sandy, Swine flu

There’s a lot this city’s lived through

Lotta ghosts that walk these streets

Burroughs, Bowie, Bourdain, Lennon, Ledger, Jackie O, Greta Garbo

And we gonna add some ghosts, 

But this city will never be a ghost town

Because we don’t spend too much time lookin down

These streets have always been dirty

But this city’s condition

Has always been about ambition,

Reaching high for the sky,

New York City

Beacon to the world in good times and bad

We shout from these spires that scrape the sky above

In at time when the world has so many questions

The answer from New York is always more love.

What is it like to have a mother-in-law battling Alzheimer’s? Our mom, Carmen, is a loving mother-in-law to our four spouses. They are just as involved in her Alzheimer’s journey as we are.

In Episode 22 of Alz In The Fam, the Fair siblings are joined by our four spouses to discuss what it has been like for them.

In the episode, we ask our spouses about their experience with our mom’s Alzheimer’s disease, when they first noticed changes in our mom and how they think it has impacted our family.

Each of our spouses share incredibly fond memories of their mother-in-law before she began showing signs of Alzheimer’s. Nicknamed ‘Car-mom’, she embraced each of our spouses and welcomed them wholeheartedly into our family.

As our family has watched the disease progress, it has been difficult on our spouses. Helping in the caregiving process, accommodating her growing needs over the years and acting as emotional support for us siblings are only the tip of the impact that her disease has had on them.

While each spouse and sibling alike has had their own experience with our mom’s Alzheimer’s, one thing is certain – the Fair clan has always been close knit but becoming a caregiver team and support system has strengthened our bond even further.

If you enjoy the podcast, would you please consider leaving a short review on Apple Podcast/iTunes?

New research into psychedelics show promising treatment options for Alzheimer’s and dementia. In Episode 21, the Fair siblings sit down with Dr. Del Potter, PhD – a scientist studying the benefits of psychedelic compounds on brain-related diseases and conditions like dementia, depression and PTSD.

Del Potter, PhD is the chief science officer and founding member of ZBN Research. He received his Ph.D. in Medical Anthropology from UC Berkeley in 1980, specializing in Ethno-psychopharmacology, the phytochemistry, and extraction of psychoactive indigenous botanical pharmacopeia and their cultural significance, and psychiatric anthropology.

Dr. Del Potter shares information on the benefits, availability and future of psychedelic treatment for Alzheimer’s and other dementia related diseases. Potter also discusses the origin of medicinal use of psychedelics.

Research shows that psychedelic compounds have positive effects on targets in the brain that may cause Alzheimer’s. As this research becomes more mainstream, more clinical trials and treatment options are becoming available for people predisposed to Alzheimer’s or dementia and those with mild cognitive impairment.

Dr. Potter also discusses the treatment options available, including a micro dosing approach that minimizes the psychoactive effects but still shows positive results. This could be a promising option for those with moderate to severe Alzheimer’s.

While research is promising, Dr. Potter expresses concerns for the future of medicinal use of psychedelics, as it does become more mainstream and adopted by big pharmaceutical companies.

Overall, the outlook on psychedelic treatment for Alzheimer’s and other brain-related diseases is positive. Dr. Potter shares incredible insights that provide hope for the future of Alzheimer’s research.

To read the article mentioned in Episode 21, go to: https://bit.ly/3szWXRd

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Getting the COVID-19 vaccine is a big decision. In Episode 20 of #AITF, the four Fair siblings discuss the difficulties of making the decision for someone else – their Mom.

During this episode, the siblings use a Q&A article from alz.org to guide them in their conversation. The article answers frequently asked questions from caregiver and people living with Alzheimer’s about the COVID-19 vaccine.

In the fall of 2020, Poli, Allan Trissi and Boni had to begin weighing the pros and cons of having their mom vaccinated against COVID-19. For one, Carmen has already contracted and recovered from COVID and has opted for a more holistic medical approach her whole life. But the siblings also understand that a vaccine can help relieve their mom of the isolation she faces in her facility.

After weighing the pros and cons, Carmen has now received the first dose of the COVID-19 vaccine. Her memory care facility made an otherwise stressful situation for her, as smooth as possible.

Now that Carmen has successfully received her first dose, her second dose is coming soon. The siblings have to make a decision on whether or not she will get that one too. The second dose seems to have more side effects, which has raised concern in the family. The worst fear is that the symptoms could place Carmen confused and alone in the hospital.

Listen as the siblings discuss the challenges that come with making a decision for someone who can no longer make those decision herself, the fear of making a wrong decision and how they overcome these challenges as a family.

Check out the article that has guided this discussion here: http://bit.ly/2MMSTxe.

If you enjoy the podcast, would you please consider leaving a short review on Apple Podcast/iTunes?

Care Coordinator and Owner of Always Best Care, Loudoun VA, Chris Kondracki joins Alz In The Fam for the very first episode of 2021! In episode 19, Allan, Poli and Boni sit down with Chris to discuss his experience as an owner and coordinator of a senior home care service company.

Always Best Care in Loudoun, VA offers Home Care with Non-Medical professionals such as companionship services & home helper services, Personal Care services and placement services for residential care.

In this interview, Chris and the siblings discuss the different types of senior care, what Chris has learned about caregiving over the years and how Always Best Care provides the best care for its patients.

While his company provides assistance to all seniors, Chris has learned quite a bit about dealing with Alzheimer’s and dementia patients throughout his career. Listen to hear his unique expertise on getting help for your loved ones, caring for someone with Alzheimer’s and how to navigate the challenging task finding care may be for your family.

Check out Always Best Care, Loudoun VA online here: https://www.alwaysbestcare.com/va/leesburg/.

If you have any questions or would like to get in touch with Chris, reach out to him at his email [email protected] 

If you enjoy the podcast, would you please consider leaving a short review on Apple Podcast/iTunes?

Advice for caregivers, from caregivers is the topic in Episode 18 of Alz In The Fam. The four Fair siblings sit down to share the best caregiving tips and tricks that they have learned from their own experiences and from others.

The first tip the siblings share is the power of music. Putting on your loved one’s favorite music can help change the mood and stimulate positive feelings. The siblings each have a specific playlist or radio station to put on when they want to change Carmen’s mood.

Many studies have been done on the positive effects of music on brain health, such as this NIH study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6022981/.

Probably one of the most important tips to take away from this episode is the importance of finding support as a caregiver. Caregiver burnout is real and very isolating. Remember to ask for help when you need and take care of your own health, both mental and physical.

Look to family or friends to confide in and take advantage of resources to help you when you need a break. For example, check out this Village in the DC Metro area that offers help to seniors in the community: https://bit.ly/3oChAtL

Poli, Boni, Trissi and Allan share many other tips that they’ve picked up along the way. Check out the episode to hear more valuable tips, from how to defuse tense situations to how to keep your loved one feeling occupied and helpful.

And check out these caregiver resources:

https://magazine.medlineplus.gov/article/caregiving-it-takes-a-village

https://www.washingtonpost.com/national/health-science/baby-boomers-join-aging-at-home-villages-for-yoga-happy-hour-ladies-night-out-tech-class-and-biking/2017/05/04/7fdf5a78-1a2a-11e7-855e-4824bbb5d748_story.html?utm_term=.176a9fff1d0e

https://dailycaring.com/5-coping-tips-for-the-overwhelmed-caregiver/

If you enjoy the podcast, would you please consider leaving a short review on Apple Podcast/iTunes?

Even as her Alzheimer’s progresses, Grandma’s love for her family shines through. In a very special Episode 17 of Alz In The Fam, Carmen’s grandchildren share their best memories of their Grandma, both before and after her Alzheimer’s diagnosis.

Allan, Poli, Trissi and Boni introduce their children who offer stories about their grandma, Carmen. Across all of the stories, one thing always remains – Carmen’s deep love and support for her family, even as her Alzheimer’s progresses.

From sleepovers with Grandma to sporting events and life milestones, the grandchildren reminisce on Carmen’s constant affection, attention and unwavering support. Each story that they told illustrates the tight bond that Grandma formed with each of her grandchildren. She has been a formative figure in each grandkid’s life.

Carmen’s love for her family, and especially her grandkids, has not been diminished by Alzheimer’s. Even as her memory changes, her love for her family has not. This episode highlights the strength of love between a grandchild and grandma. Listen now to meet the grandchildren and hear their stories.

If you enjoy the podcast, would you please consider leaving a short review on Apple Podcast/iTunes?

Aspects to consider when choosing a care facility for your loved one with Alzheimer’s or dementia is the topic of Alz In The Fam Episode 16. In this episode, the four Fair siblings discuss their journey to find the right place for their mom, Carmen, to live.

When searching for the correct facility for their mom, the Fair siblings had three important criteria that it had to meet; it had to be financially doable, close to family and meet their mom’s social, physical and mental needs.

Poli, Boni and Trissi surveyed many different facilities with various offerings before selecting one that seemed like a good fit for Carmen. They looked at places strictly for memory care patients, extended care facilities, assisted living communities, religiously affiliated care centers, and every other option available, all with their own sets of pros and cons.

Ultimately, the four siblings decided that their proximity to Carmen was most important because families still need to participate in their loved one’s care, even once they move. After consulting with a company to help narrow down their search, the siblings found a place walking distance from Poli that seemed like a great fit for Carmen.

The place that they chose, where Carmen still lives, was a new facility with a great management team. Most importantly, Carmen’s floor also has a balcony where she can enjoy the outdoors – her access to outside space was a huge consideration in their selection process.

Most interestingly to the siblings is how quickly an Alzheimer’s patient’s needs can change within a few years. When the Fair family began their search for a facility in 2015, their priorities for Carmen’s care were different than they are now, in 2020, as her Alzheimer’s has progressed; facilities that once would not suit Carmen now may seem like a better fit than where she currently lives.

Overall, the process of picking the correct care facility is overwhelming and challenging, but having Carmen close to family and in a place where she feels safe and adjusted is most important.

If you enjoy the podcast, would you please consider leaving a short review on Apple Podcast/iTunes?

In Episode 15 of Alz in the Fam, the four Fair siblings each share a book that has helped them in the Alzheimer’s caregiving journey. These books, while all different, all have helped the Fair siblings grapple with the topic of Alzheimer’s.

First up, Boni shared a book called Elizabeth is Missing  by Emma Healey, a fiction book that shares the story of Maud, an aging grandmother, and her family as she descends into Alzheimer’s. For Boni, Maud has many similarities to their mom, Carmen, and the book is both relatable and moving. Maud and Carmen are both strong willed, independent women who are aware of peoples’ moods around them, even as their memories fade.

Trissi discussed her book next – How to Talk So Kids Can Learn by Adele Faber and Elaine Mazlish. While its originally written for kids, Trissi has found many tips that are incredibly helpful to interacting with and respecting the emotions of Carmen, such as ‘indulge in their fantasies’ and ‘make it feel like their decision’.

For Allan’s choice, he shared The Urban Monk by Pedram Shojai – a book that taught him how to find satisfaction with stillness and create habits that increase his overall wellbeing. This book helped him grapple with the guilt and frustration he felt due to the distance from his mom and her Alzheimer’s progression.

Lastly, Poli brought Brain Food by Dr. Lisa Mosconi as her book of choice. Dr. Mosconi is both a neuroscientist and a certified integrative nutritionist and in this book, she shares what food our bodies require to best benefit our brains. She has even recreated the typical food pyramid to showcase what we should really be eating. Poli has taken a lot of her tips into practice, as the right diet can help prevent the onset of Alzheimer’s.

Funny enough, all four siblings discovered that they eat the same breakfast every day – a meal full of the foods that Dr. Lisa Mosconi encourages us to eat.

All of these books are available on Amazon! While the Fair siblings are no experts, the authors that they shared here are. These books have really helped the Fair family in their caregiving process and encourage anyone in a similar situation to check them out, whether they are on their own mental health journey or that of a loved one.

If you enjoy the podcast, would you please consider leaving a short review on Apple Podcast/iTunes?

In Episode 14 of Alz In The Fam, Poli, Allan and Trissi discuss technological resources that have impacted their caregiving. As their mom’s Alzheimer’s progresses, they have found quite a few technologies that really benefit their caregiving.

One of the first technologies that the family adapted was a DayClox DigitalClock. This clock has the day and date on the face of it, and really helps orient their mom each day. To troubleshoot another large problem, the family also tried a Med-E-Lert Locking Automatic Pill Dispenser that helped them monitor their mom’s pill intake.

Out of all of the technology that the Fair family has adapted to best care for their mom, one of the most useful is the Apple Watch 6 that their mom wears. The Apple Watch has many health and safety features that helps the family monitor their mom, even from afar.

There have been some downsides to this tech, however. For example, there is a button on the watch that automatically dials 911, and their mom, Carmen, has pressed that twice. Also, Carmen does not always remember to charge the watch, so the family cannot always rely on this device.  

Along with that, their mom has an iPhone XR to pair with the Apple Watch. This phone’s picture sharing capabilities are also a big draw, as it allows their mom, Carmen, to scroll through pictures and find joy through that. Carmen also uses an iPad, where the family has found great brain games to both entertain her and engage her mind. Her favorite app is the jigsaw puzzle app.

Medically, three tech resources have made huge improvements in their Alzheimer’s care – the new Patient Portals online for doctors office, the Scanner Pro app for the iPhone and at home urine test strips to check for UTIs. The online portals for doctors’ offices have made communication between the family and doctors more convenient, which is a great help.

When Carmen was still living alone, the family adopted some home tech advancements, such as a programmable thermostat, a home security system and the Logi Circle Wifi Home Security Camera. This security camera helped the family monitor their mom’s movements even when they couldn’t be there in person. While this was a huge positive, it was also hard for the Fair siblings to watch their mom live on her own and see how she behaved by herself.

The future of Alzheimer’s technology also looks bright. With young inventors creating new products like socks with sensors in them or apps specifically for Alzheimer’s patients, it is comforting to see tech in this space constantly improving. 

If you’re a caregiver, check out the links to these products above and let us know what other tech you use to help your care!

If you enjoy the podcast, would you please consider leaving a short review on Apple Podcast/iTunes?