Bladder Cancer Matters

Tune in to Episode 70 of Bladder Cancer Matters podcast in which Howard L., a bladder cancer survivor and recovering alcoholic, candidly shares his inspiring journey. Howard discusses his battle with alcoholism, the pivotal role Alcoholics Anonymous (AA) played in his recovery, and his challenging path to a bladder cancer diagnosis, including the critical steps of misdiagnosis and the pursuit of a second opinion. He underscores the vital support provided by resources like the Bladder Cancer Advocacy Network (BCAN) and draws compelling parallels between AA and BCAN’s supportive communities. Howard’s story is a powerful reminder of the importance of reaching out for support and the difference it can make in overcoming life’s toughest challenges. Join us to find encouragement and understanding through his profound insights and experiences.

Join us on the Bladder Cancer Matters podcast as host Rick Bangs interviews Dr. Bishoy Faltas, director of Bladder Cancer Research at the Englander Institute of Precision Medicine at Weill Cornell. Dive into the transformative role of artificial intelligence (AI) in diagnosing and treating bladder cancer. From automated technologies in everyday life to advanced applications in diagnostics and patient care, Dr. Faltas explores how AI is reshaping the landscape of cancer care. Discover AI's potential in prevention, early detection, and even in enhancing doctor-patient communication. Don't miss this deep dive into the exciting advancements and future possibilities of AI in improving bladder cancer outcomes.

Join us for an enlightening episode of Bladder Cancer Matters with Dr. Donald Lamm, a trailblazer in bladder cancer treatment and the driving force behind the groundbreaking Lamm Protocol. Discover the journey of BCG immunotherapy from its inception in the 1970s to becoming a the gold standard in non-muscle invasive bladder cancer care. Delve into Dr. Lamm's insights on the nuances of BCG therapy, including dosing, strain differences, and the critical challenges of supply shortages. With a career dedicated to advancing urologic oncology, Dr. Lamm shares his optimistic vision for the future of BCG treatments, promising enhanced outcomes through innovative approaches. Tune in to explore how Dr. Lamm's work has revolutionized the fight against bladder cancer, offering hope and improved survival for thousands.

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Join Dr. Aditya Bagrodia, a urologic oncologist, on Episode 67 of the Bladder Cancer Matters podcast as he unveils the power of shared decision making in bladder cancer care. Learn why involving patients and caregivers in treatment choices, rooted in their values and informed by expert insight, is crucial across all stages of bladder cancer. Discover the goals of care from non-muscle invasive bladder cancer to advanced stages, and empower yourself to advocate for your health. Dive deep into a world where patient education and collaboration pave the way to personalized care.

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Dive into Dean Karrel's powerful journey as a bladder cancer survivor, from his initial diagnosis to life after a radical cystectomy, in Episode 66 of Bladder Cancer Matters. Dean shares the symptoms that led to his life-changing diagnosis, the resilience he maintained through treatments that failed him like BCG and Gemcitabine, and his decision for life-saving surgery. His story is a unfiltered look at the challenges post-surgery, the crucial role of support from nurses and care teams, and his gratitude towards them.

Dean highlights the importance of organizations like BCAN in supporting bladder cancer patients and calls on patients to advocate for themselves, ask questions, and live fully post-diagnosis. His journey isn't just about survival; it's an inspiring call to action, emphasizing strength, advocacy, and hope. Join us to be moved and motivated by Dean's indomitable spirit.

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In this episode of Bladder Cancer Matters, host Rick Bangs chats with Dr. Elizabeth Guancial, a medical oncologist at Florida Cancer Specialists in Sarasota, Florida.

They discuss the differences between receiving bladder cancer care in academic medical centers and community hospitals. Dr. Guancial is an expert because she has practiced in both types of institutions.

Dr. Guancial shares that in academic medical centers, the focus is on teaching, research, and patient care, while community settings prioritize patient care. Community settings can often provide quicker care and more personalized attention, but academic medical centers may offer specialized procedures and access to clinical trials. Patients should consider factors such as the urgency of their condition, the need for specialized procedures, and the availability of clinical trials when deciding whether to seek care in a community or academic setting. It is also important for patients to feel comfortable with their healthcare providers and to seek second opinions if desired.

In this riveting episode of the Bladder Cancer Matters podcast, Mark Story sits down with Rick Bangs, the podcast's host and a muscle-invasive bladder cancer survivor. Dive deep into Rick's personal battle with bladder cancer and uncover the critical role of patient advocacy in shaping research. You'll also discover the behind-the-scenes magic of podcast production and get a glimpse into the future of bladder cancer diagnosis and treatments. Rick passionately advocates for the advancement of precision medicine, the development of less invasive diagnostic and treatment methods, expanded access to cutting-edge treatments and clinical trials, and the power of unity among cancer advocacy organizations.

In Part 3 of this Bladder Cancer Matters podcast, host Rick Bangs continues his conversation with Bill Robertson, a bladder cancer survivor, and Dr. Vikram Narayan, an assistant professor in the Department of Urology at Emory University School of Medicine. They discuss the challenges and adjustments that come with having an ileal conduit, a common diversion procedure for bladder cancer patients.

Dr. Narayan emphasizes the importance of understanding the recovery process and finding the right stoma appliance. Bill shares his personal experience with daily life after the surgery, including the need for physical activity and the support he received from his wife and others.

Both Dr. Narayan and Bill stress the importance of seeking support from organizations like the Bladder Cancer Advocacy Network (BCAN) and connecting with other patients who have gone through similar experiences.

They also highlight the psychological impact of a bladder cancer diagnosis and the need for mental health support. The episode concludes with final thoughts from Bill and Dr. Narayan, who encourage patients to focus on their return to normalcy and to seek help and support throughout their journeys.

In Part 2 of 3 in this Bladder Cancer Matters podcast, host Rick Bangs continues his conversation with Bill Robertson, a bladder cancer survivor, and Dr. Vikram Narayan, an assistant professor in the Department of Urology at Emory University School of Medicine.

They discuss the difficult decision of undergoing a radical cystectomy, the potential benefits of bladder removal, and the importance of understanding a patient's values and preferences when discussing treatment options.

They also touch on the different types of urinary diversions and the challenges that come with them, such as learning how to change the bag and adjusting to a new lifestyle. The episode concludes with a discussion on the time it takes to change a bag and the frequency of bag changes.

In Part 1 of a three part "Bladder Cancer Matters" podcast, join host Rick Bangs as he engages in an enlightening conversation with bladder cancer survivor, Bill Robertson, and Dr. Vikram Narayan of Emory University School of Medicine. Dr. Narayan is Bill’s urologist and helped him navigate the challenges of a bladder cancer diagnosis and resulting bladder removal.

Dr. Narayan sheds light on the critical role of a comprehensive, multidisciplinary team in delivering exceptional care to bladder cancer patients. Bill Robertson shares his heartfelt appreciation for the outstanding support and expertise provided by the team at Emory. The discussion also explores the pivotal decision-making process behind opting for a radical cystectomy. The episode wraps up with an enticing preview of the upcoming parts two and three of this engaging conversation.

Don't miss this compelling exploration of resilience, advanced care, and the innovative approaches to bladder cancer treatment.