Children's Palliative Care Voices

During our third podcast, you can hear All-Party Parliamentary Group (APPG) for Children Who Need Palliative Care Co-Chair Catherine McKinnell MP and APPG member David Linden MP and Christine Jardine MP hear evidence from:

• Dr Sat Jassal (Medical Director, Rainbows Hospice for Children and Young People)

• Francis Edwards (Palliative Care Liaison Nurse, University Hospitals Bristol NHS Foundation Trust)

• Julie Potts (Diana Service Palliative Care Lead Nurse, Leicestershire Partnership NHS Trust)

• Dr Fauzia Paize (Consultant Neonatologist, Liverpool Women's NHS Foundation Trust).

This evidence session, recorded on 21 February 2018, is one of several which the APPG held as part of its inquiry. If you would like to know more about Together for Short Lives, or how you can support our vital work, please visit our website at www.togetherforshortlives.org.uk

During our second podcast, you can hear the co-chairs of the All-Party Parliamentary Group (APPG) for Children Who Need Palliative Care, the MPs Catherine McKinnell and Dr Caroline Johnson, hear evidence from Doug Morris, a father of a young man who has a life-limiting condition, and Stephanie Nimmo and Carly and Paul Hadman, who are all bereaved parents of children who died as a result of life-limiting conditions. This evidence session, recorded on 7 February 2018, is one of several which the APPG held as part of its inquiry. If you would like to know more about Together for Short Lives, or how you can support our vital work, please visit our website at www.togetherforshortlives.org.uk

During our sixth podcast, you can hear All-Party Parliamentary Group (APPG) for Children Who Need Palliative Care Co-Chair Dr Caroline Johnson MP hear evidence from:

• Lindsey Barron, Integrated Children’s Commissioner, Luton Council and Luton Clinical Commissioning Group
• Julie Bayliss, Consultant Nurse Paediatric Palliative Care, Great Ormond Street Hospital Foundation Trust
• Professor Bernie Carter, Professor of Children's Nursing, Edge Hill University
• Rachel Cooke, Bereavement Service Manager and Joint Manager, Child Death Helpline, Great Ormond Street Hospital Foundation Trust (representing the Royal College of Nursing)
• Dr Helena Dunbar, Senior Lecturer, School of Nursing and Midwifery, De Montfort University
• Dr Sue Neilson, School of Nursing, University of Birmingham.

This evidence session, recorded on 14 March 2018, is one of several which the APPG held as part of its inquiry. If you would like to know more about Together for Short Lives, or how you can support our vital work, please visit our website atwww.togetherforshortlives.org.uk

During our fifth podcast, you can hear All-Party Parliamentary Group (APPG) for Children Who Need Palliative Care Co-Chair Catherine McKinnell MP hear evidence from:

• Dr Renee McCulloch (Chair, College Specialty Advisory Committee - Paediatric Palliative Medicine, Royal College of Paediatrics and Child Health). Dr McCulloch is also a Consultant in Paediatric Palliative Medicine and Guardian of Safe Working at The Louis Dundas Centre, Great Ormond Street Hospital for Children NHS Foundation Trust.

• Dr Simon Clark (Officer for Workforce Planning, Royal College of Paediatrics and Child Health).

• Dr Emily Harrop (Chair, NICE Clinical Guideline Development Group). Dr Harrop is also Consultant in Paediatric Palliative Care at Helen and Douglas House Hospices

This evidence session, recorded on 7 March 2018, is one of several which the APPG held as part of its inquiry. If you would like to know more about Together for Short Lives, or how you can support our vital work, please visit our website atwww.togetherforshortlives.org.uk

During our fourth podcast, you can hear All-Party Parliamentary Group (APPG) for Children Who Need Palliative Care Co-Chair Catherine McKinnell MP and Christine Jardine MP hear evidence from:

• Dr Linda Maynard (Consultant Nurse Children’s Palliative Care, East Anglia's Children's Hospices)

• Maria McGill (Chief Executive, Children's Hospices Across Scotland (CHAS))

• Toby Porter (Chief Executive Acorns Children's Hospice).

This evidence session, recorded on 21 February 2018, is one of several which the APPG held as part of its inquiry. If you would like to know more about Together for Short Lives, or how you can support our vital work, please visit our website at www.togetherforshortlives.org.uk

Welcome to a series of podcasts called children’s palliative care voices from Together for Short Lives, the leading UK charity that, together with our members, speaks out for children and young people who are expected to have short lives.

Our first podcasts are recordings of oral evidence sessions held by the All-Party Parliamentary Group for Children Who Need Palliative Care. The All-Party Group, or APPG for short, is a group of MPs and peers at Westminster with a specific interest in improving the quality of life - and quality of end of life care - for the 49,000 babies, children and young people in the UK who have life-limiting or life-threatening conditions. During 2017 and 2018, Together for Short Lives is supporting the APPG to conducting an inquiry into the extent to which the UK government’s end of life care choice commitment is being met for children in England. This oral evidence session is part of that inquiry.

During our first podcast, you can hear the APPG’s co-chairs, the MPs Catherine McKinnell and Dr Caroline Johnson, hear evidence from Lucy Watts MBE, a young woman who has a life-limiting condition. This evidence session, recorded on 7 February 2018, is one of several which the APPG held as part of its inquiry. If you would like to know more about Together for Short Lives, or how you can support our vital work, please visit our website at www.togetherforshortlives.org.uk

During our sixth podcast, you can hear All-Party Parliamentary Group (APPG) for Children Who Need Palliative Care Co-Chair Dr Caroline Johnson MP hear evidence from:

• Lindsey Barron, Integrated Children’s Commissioner, Luton Council and Luton Clinical Commissioning Group
• Julie Bayliss, Consultant Nurse Paediatric Palliative Care, Great Ormond Street Hospital Foundation Trust
• Professor Bernie Carter, Professor of Children's Nursing, Edge Hill University
• Rachel Cooke, Bereavement Service Manager and Joint Manager, Child Death Helpline, Great Ormond Street Hospital Foundation Trust (representing the Royal College of Nursing)
• Dr Helena Dunbar, Senior Lecturer, School of Nursing and Midwifery, De Montfort University
• Dr Sue Neilson, School of Nursing, University of Birmingham.

This evidence session, recorded on 14 March 2018, is one of several which the APPG held as part of its inquiry. If you would like to know more about Together for Short Lives, or how you can support our vital work, please visit our website atwww.togetherforshortlives.org.uk

During our fifth podcast, you can hear All-Party Parliamentary Group (APPG) for Children Who Need Palliative Care Co-Chair Catherine McKinnell MP hear evidence from:

• Dr Renee McCulloch (Chair, College Specialty Advisory Committee - Paediatric Palliative Medicine, Royal College of Paediatrics and Child Health). Dr McCulloch is also a Consultant in Paediatric Palliative Medicine and Guardian of Safe Working at The Louis Dundas Centre, Great Ormond Street Hospital for Children NHS Foundation Trust.

• Dr Simon Clark (Officer for Workforce Planning, Royal College of Paediatrics and Child Health).

• Dr Emily Harrop (Chair, NICE Clinical Guideline Development Group). Dr Harrop is also Consultant in Paediatric Palliative Care at Helen and Douglas House Hospices

This evidence session, recorded on 7 March 2018, is one of several which the APPG held as part of its inquiry. If you would like to know more about Together for Short Lives, or how you can support our vital work, please visit our website atwww.togetherforshortlives.org.uk

During our fourth podcast, you can hear All-Party Parliamentary Group (APPG) for Children Who Need Palliative Care Co-Chair Catherine McKinnell MP and Christine Jardine MP hear evidence from:

• Dr Linda Maynard (Consultant Nurse Children’s Palliative Care, East Anglia's Children's Hospices)

• Maria McGill (Chief Executive, Children's Hospices Across Scotland (CHAS))

• Toby Porter (Chief Executive Acorns Children's Hospice).

This evidence session, recorded on 21 February 2018, is one of several which the APPG held as part of its inquiry. If you would like to know more about Together for Short Lives, or how you can support our vital work, please visit our website at www.togetherforshortlives.org.uk

During our third podcast, you can hear All-Party Parliamentary Group (APPG) for Children Who Need Palliative Care Co-Chair Catherine McKinnell MP and APPG member David Linden MP and Christine Jardine MP hear evidence from:

• Dr Sat Jassal (Medical Director, Rainbows Hospice for Children and Young People)

• Francis Edwards (Palliative Care Liaison Nurse, University Hospitals Bristol NHS Foundation Trust)

• Julie Potts (Diana Service Palliative Care Lead Nurse, Leicestershire Partnership NHS Trust)

• Dr Fauzia Paize (Consultant Neonatologist, Liverpool Women's NHS Foundation Trust).

This evidence session, recorded on 21 February 2018, is one of several which the APPG held as part of its inquiry. If you would like to know more about Together for Short Lives, or how you can support our vital work, please visit our website at www.togetherforshortlives.org.uk