My rare disease
by Katy BakerWelcome to 'My rare disease' podcast. This is a platform where I raise awareness of something that affects 1 in 15 people, rare disease. By chatting to patients, health professionals and advocates, we talk about all aspects of rare disease including relationships, mental health and much more. I cannot wait for you to hear some truly inspiring stories from some absolutely amazing people. From being diagnosed with a rare disease myself at 10 weeks old, it has given me the motivation to give others in the rare disease community an opportunity to share their thoughts and experiences.
Copyright: Katy Baker
Episodes
Having a sister with a rare disease - Lucy Baker
35m · PublishedMental health - Fiona Shepherd
29m · PublishedCholesteatoma - Daisy Marriott
34m · PublishedOccupational Therapy - Chloe Holmes
18m · PublishedIn this episode I talk to Chloe who studied Occupational Therapy at the University of Northampton and is now working as a paediatric OT supporting children with a range of additional needs. Occupational Therapists are important in helping people of all ages for different reasons e.g ageing, mental ill-health and physical disabilities and in this episode, we touch on one experience Chloe had with a child with Rett syndrome.
Cavernous malformation (CCM) - Sadie
32m · PublishedLyme disease and mental health - Sophie Ward
29m · PublishedIdiopathic Hypersomnia - Matt Baker
1h 7m · PublishedUlcerative Colitis & Arthritis - Ellie Sanders
59m · PublishedMy rare disease - Podcast trailer
41s · PublishedMy rare disease has 29 episodes in total of non- explicit content. Total playtime is 19:03:41. The language of the podcast is English. This podcast has been added on December 23rd 2022. It might contain more episodes than the ones shown here. It was last updated on April 28th, 2024 09:40.