Health Hats, the Podcast

We all create a wake: the downstream turbulence of us. Treat unintended consequences as welcomed guests. Catalog & learn from them. Brief episode with Health Hats Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) The downstream turbulence of us 00:53. 1 Unintended consequences. That’s COVID life. 02:41. 1 Disasters and public health 04:45. 1 Various unintended consequences 05:58. 2 Reflection 08:12. 2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Sponsored by Abridge Photo by Bee Calder on Unsplash Thanks to these fine people who inspired me for this episode: Jane Sarasohn-Kahn, Robert Doherty, Dorothy Cuccinelli, Dick Argys, Caryl Carpenter, Suzanne Feeney Links Jane Sarasohn-Kahn, Health Populi (amazing, day-in and day-out), The She-Cession – a Financially Toxic Side-Effect of the Coronavirus Pandemic. Moving to Flood Plains The Unintended Consequences of the National Flood Insurance Program on Population Flows Mark Twain and the Paige Typesetter Brent Goldfarb and David Kirsch, Bubbles and Crashes Edward Tenner’s TED Talk, Unintended Consequences How to start a movement Related podcasts and blogs https://health-hats.com/make-a-ruckus-podcasting/ https://health-hats.com/superpowers/ https://health-hats.com/more-journal-for-best-health/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. [email protected]. The material on this site created by others is theirs and use follows their guidelines. The Show The downstream turbulence of us We all create a wake - the downstream turbulence of us, think a boat or a duck. Many people don’t realize they leave a wake behind them.  Those that do rely on family, friends, co-workers, and coaches to let them know about that wake so they can mitigate (lessen) the impact of these unintended consequences of being. In the ’90s at Value Behavioral Health in Troy, NY, Jim Bulger, my mentor and best boss ever, often spoke to me about my wake. Another great boss and mentor, Bob Doherty, at St. Peter’s Addiction Recovery Center told me, with love, that I was an acquired taste. I learned that I needed a boss with self-confidence to value me and my wake.  My 9-year-old grandson, the writer, read to me from a book he wrote about wizards using wands. I asked him how using a wand affected the wizard. He said, ‘sometimes powers can come back up the wand to t...

Try massive numbers of solutions to get you below the threshold to function. Most won't work. Some will. Try for 2 weeks. Doesn't work? Try something else. Inspiration about chronic pain from Dr. CJ Rhoads Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:57. 1 Introducing Dr. CJ Rhoads 03:43. 1 Accept it. You won a lottery. 04:46. 2 Continual experiment 09:16. 3 Keeping track. Two week rule. 15:14. 4 Collaborative decision-making? 18:17. 5 Cognitive Behavioral Therapy 22:41. 6 Health inequities 26:56. 6 Advise us 29:48. 7 Reflection 31:21. 7 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Amy Baxter, Penney Cowan, Harvey Hellerstein, Mellisa Reynolds, Shelley Smith, MarlaJan Wexler Links Dr. Rhoads: HPL Consortium, Inc and CIRWEP Related podcasts and blogs Health Hats series about Chronic Pain Health Hats series about CDS: Choices About Your Health With Your Team About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. [email protected]. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Forty-six words for snow in Iceland. How many for physical pain in English? Googling synonyms: suffering, aching, torture, throbbing, discomfort, ache, sore, sting, twinge, shooting, irritation, tenderness… I recall sitting with my mom when she was dying of pancreatic cancer, trying to understand what her pain felt like. ‘Ma, is it sharp, dull, aching, constant, ebbing, and flowing?’  The more descriptors I tried to come up with, the more frustrated she became with me.  No words worked for her. Yet she tried to describe it to the hospice nurse or doctor without success.  Granted, my mom was homebound and bedridden. She was past the place where function mattered. How does your pain affect your ability to socialize and work? The way I manage my annoying neurological pains is to get to know them intimately. Meditate on the pain. Sensation, location, travel, duration, what makes it better or worse…. It takes the edge off, helps me be less freaked out, and I can manage with less medication. I find my professional team intrigued by my desire to describe it in such great detail. To them, I’m a bit of a freak. Speaking of amazing,

Accept what is and move on. Lessons from sand travel, adapting to shifting abilities, gratitude. Brief episode with Health Hats. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Pack as for a newborn 00:52. 1 Sand travel 02:14. 1 Adapt to abilities 03:18. 1 Gratitude 04:46. 1 Adjust 05:11. 2 Superpowers 05:59. 2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Libby Hoy, Paulette Seymour-Route, Ann Boland, Oscar Links Hip flexion assist device (HFAD) Ergobaum Prime 7TH Generation Ergonomic Forearm Crutches Medline Aluminum Rollator Walker Forcemech Navigator Electric Wheelchair Related podcasts and blogs https://health-hats.com/superpowers/ https://health-hats.com/gratitude-podcasting-best-health/ https://health-hats.com/pride-falls/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. [email protected]. The material on this site created by others is theirs and use follows their guidelines. The Show Pack as for a newborn Packing our Chevy Bolt for a three-night excursion to the New Hampshire shore (one hour away) with my honey: Ankle foot orthotic – check. Hip flexion assist device (HFAD) – check.  Folding canes with Ergocap High-Performance Rubber Tips – check. Ergobaum Prime 7TH Generation Ergonomic Forearm Crutches – check. Medline Aluminum Rollator Walker – check. Forcemech Navigator Electric Wheelchair – check. I feel like I’m packing for a newborn, except it’s me, the two-legged, cisgender, old white man of privilege. My left leg is getting weaker these past few months, more pain, less mobile, less stable - hence the added equipment. Don’t get me wrong; I’m grateful for the assistive devices. My risk of falling is manageable. I can still get my 3,500 steps a day. I can accompany my wife on longer walks. Sand travel We get to New Hampshire and hit the beach. Moving on sand was interesting - a big experiment. My wheelchair handles gravel, cobblestones, a 12-degree grade, packed sand, but not beach sand. Neither does the Medline Aluminum Rollator Walker. The 8-inch front wheels sink in the loose sand. We hunted for boardwalks through the dunes and found some. A bit narrow when people were coming towards us. My wife carried the walker (rollator means it has a built-in seat with hand brakes) onto the...

Jessica DeFrank about chronic pain, reducing opioid use, research to action, risk tolerance, technology pre- and post-Covid, informed decision-making & families Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:53. 1 Introducing Jessica DeFrank 02:07. 1 Pragmatic study explained 04:19. 2 INSPIRE study for management of chronic pain 06:46. 2 Technology pre- and post-Covid 10:15. 3 What about educating clinicians? 11:40. 3 Technology and COVID 14:18. 4 Barriers 17:14. 5 INSPIRE and technology 19:54. 5 Medication-free solutions 22:40. 6 Results in action (implementation) 23:54. 6 Risk Tolerance – risky business 27:48. 7 Informed decisions and family caregivers 37:06. 9 King for a day – equal access 40:05. 9 After INSPIRE 42:03. 10 Reflection 43:55. 10 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Lauren McCormack, Laura Marcial, Josh Richardson, David Edwards, Penney Cowan, Jessica Deary, CJ Rhoads Links Jessica DeFrank's research RTI International at the Center for Communication Science INSPIRE is a clinical trial, a pragmatic clinical trial that RTI leads Car with Four Flat Tires, a video released by the American  Chronic Pain Association Related podcasts and blogs Health Hats series about Chronic Pain Health Hats series about CDS: Choices About Your Health With Your Team About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. [email protected]. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Why my fascination with chronic pain? So many people have it? Pain is often silent, hidden, personal, universal, misunderstood, devastating, mysterious, sapping, infuriating, inexplicable, unique, varied. Wow, just scratching the surface and piercing the heart. Managing pain draws on almost everything we know about managing life well at a time when we can’t manage a thing. On the other hand, when successful, pain management to live life, can be most satisfying. Poetic, isn’t it? My series on pain management collects personal stories, mine and others – people with pain, clinicians, partners, academics, activists, device makers, and more. Introducing Jessica DeFrank Today I’m joined by Jessica DeFrank. Dr.

Chronic pain, medical choices, tech, & health equity converge in a free-wheeling conversation with the Patient-Family Advisor Network chronic pain task force. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:58. 1 Using apps in general 03:56. 1 Health equity – more than seats at the table? 12:44. 3 Systematic inclusion. Put your money where your mouth is. 20:14. 4 From token to sustainable 23:40. 5 Trust, inequity, and power 26:41. 5 Who empowers whom? 29:51. 6 What questions do we ask? 33:30. 7 Black Lives Matter. Stay home to advocate. 41:26. 8 Reflection 43:10  9 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Photo by Benji Aird on Unsplash Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Pastor Bruce Hanson, Janice Tufte, Rosie Bartel, Cherie Binns, Katie Cascamo, Harvey Hellerstein, Laura Jackson, Lindsay Galli, Joe Connell  Links Patient Family Advisor Network https://www.youtube.com/watch?time_continue=1&v=vBY2tNi5hyM&feature=emb_logo Research says that most people (80%) have smartphones. 52% of smartphone users collect health-associated information on their devices On Racism: A New Standard for Publishing On Racial Health Inequities Apps used by guests Strava Peloton UCLA Mindfulness for meditation NASA Mayoclinic.org Related podcasts and blogs Health Hats series about Chronic Pain Health Hats series about CDS: Choices About Your Health With Your Team About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. [email protected]. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Pain management, medical choices, technology, and health equity all converge during this episode in a free-wheeling conversation with my compatriots from the Patient-Family Advisor Network chronic pain task force. Let’s unpack that stew of an introductory sentence a bit.  People with chronic pain need tools and plans to manage their pain. Tools include medication, therapies, exercises, dietary, and more. We choose tools to help us manage pain best when we have a team to help us discover tools, fit the right tool to the right time and circumstances, support our experimentation, and make the whole managing process easier and easier. Technology may or may not help us connect,