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Beyond the Disability

by Janice Brown

A podcast that features the lives of those persons with a disability who are living their lives to their fullest

Copyright: 2021

Episodes

Navigating social media for the Hard of Hearing, Kellina Powell's story

32m · Published 24 Mar 08:00

In today’s Episode, Janice Brown talks with Kellina Powell about being a black deaf woman in America. Kellina shares her story of a medical mistake that left her deaf. Kellina grew up deaf and has become very active on social media, helping others to be user-friendly for deaf people.

 

Conversation Highlights:

{00:50} Kellina’s story

{07:40} Life as a deaf child

{10:20} Life as a deaf highschooler

{13:48} Devices Kellina uses

{15:13} Life today as a deaf woman

{21:21} What the future looks like

{24:08} The Six Ps

 

Resources:

Kellina's website: Coach | Mental Health Coach (kellinaempowerment.com)

Show notes: Kellina's e-mail address: Kellinaempowerment.com

IG: Deafqueenboss, Twitter: cutiekellina

Face Mask that she uses: https://amwy.me/8FXP6xkUQ

betterhealthandrehab.com

Martha Lang, PhD on living with HIV

51m · Published 10 Mar 09:00

In today’s Episode, Janice Brown talks with Martha Lang about her life with HIV. She tells the story of receiving devastating news in the late 1980s. and then learning to live with the disease. She shares how her body has been affected, and how she works as an advocate for others.

 

Conversation Highlights:

{02:20} Martha’s story of HIV

{09:49} Teaching other people

{17:07} Three things that happened to her body when Martha got AIDS

{21:03} Dealing with COVID

{29:30} Martha’s writings

{34:36} Six Ps

{48:30} Troublemaker Award

 

 

Resources:

Martha's book that can be found on Amazon - 

Hope in Times of Plague: Introduction - Kindle edition by Lang Ph.D. , Martha E. . Professional & Technical Kindle eBooks @ Amazon.com.

 

The software she uses to organize her life:

ClickUp.com

 

betterhealthandrehab.com

Dr. Mercado, Family Medicine Physician on living with ADHD

46m · Published 24 Feb 09:00

In today’s Episode Janice Brown talks with Dr. Mercado about her life with ADHD. She tells her story of life through elementary, high school, and college with undiagnosed ADHD. She gives hope as she explains her life as a doctor with ADHD.

 

Conversation Highlights:

{00:53} Introduction to Dr. Mercado and her journey

{09:19} Life today as a Dr. with ADHD

{16:08} What Dr. Mercado does today to thrive

{24:08} Advice for the average adult with ADHD

{33:30} The six Ps

 

Resources:

Dr. Mercado's website: www.adhd-lifecoach.com

Dr. Mercado's podcast - The Overachievewithadhd's Podcast - Beyond ADHD A Physician's Perspective Podcast

Dr. Mercado's Facebook Group: Beyond ADHS: A Phsycian's Perspective

Dr. Marcando's TikTok account: @doctor_adhd_coach

Information for families and individuals living with ADHD: www.additudemag.com

The tapping solution, a form of meditation: The Tapping Solution (EFT): How To Get Started

 

betterhealthandrehab.com

 

A Mother's perspective on raising a child with Sensory Processing Disorder (SPD)

58m · Published 10 Feb 09:00

In today’s Episode, Janice Brown talks with a mother of a child with Sensory Processing Disorder. She talks about the process of getting a diagnosis, learning about the disorder, and finding help for her son.

 

Conversation Highlights:

{01:45} The journey

{02:25} What is Sensory Processing Disorder?

{06:36} Finding help

{16:20} Dietary changes

{25:18} Interactive Metronome

{30:17} How puberty affected the disorder

{37:07} Her son today

{45:54} The six Ps.

 

 

Resources:

[email protected]

https://linkedin.com/in/cherylboyles

https://facebook.com/group/trulyricherwoman

www.cherylboyles.com

www.interactivemetronome.com

 

betterhealthandrehab.com

Anima the Visual Artist - Living with Mast Cell Activation Syndrome

41m · Published 27 Jan 09:00

In today’s Episode, Janice Brown talks with Anima, an artist living with Mast Cell Activation Syndrome. She explains the difficulty of getting diagnosed and learning to live with a disease that has no cure.

 

Conversation Highlights:

{01:13} Anima’s journey

{02:50} What is Mast Cell Activation Syndrome?

{03:56} How Anima’s became sick

{11:47} Getting diagnosed

{13:16} Managing day to day

{16:23} Triggers

{18:26} Heart Break Syndrome

{21:48} How the experiences have affected Anima’s ART

{37:00} Three Ps. Purpose, Pleasure, and Pride

 

 

Resources:

https://www.goodreads.com/book/show/79917.Crowds_and_Power

 

https://vitruvianvision.com/

 

betterhealthandrehab.com

Living with the Silent Disability of Chronic Pain

1h 6m · Published 13 Jan 09:00

Living with Chronic Pain

In today’s episode, Janice Brown talks with Serita Valmond about pain management and chronic pain. Janice and Serita talk about using supplements, diet, exercise, and other tools to help deal with pain.

 

Conversation Highlights:

{02:40} Story of Serita Valmond

{22:29} Diet and pain management

{23:30} The pieces of pain management and the time it took to incorporate into everyday life

{32:15} Pain management improvement from accident to today

{34:15} Using supplements

{40:15} Primary care providers and their knowledge of pain management

{47:30} living with an invisible disability

{51:00} Product- Practice- Purl of wisdom- Purpose- Pleasure and Pride.

 

 

Resources:

Instagram @Iamchronicallyresilient.

To read the book "The Comeback Anthology", in which she authored a chapter email her directly at [email protected].

 

betterhealthandrehab.com

 

Lifelong educator with bilateral lower extremity limb loss, the story of Leslie Green

1h 14m · Published 30 Dec 08:00

In today’s episode, Janice Brown talks with Leslie Green about her health journey that led to limb loss. Leslie found education helped her find healing and purpose. Now she shares her education with both doctors and amputees.  

 

Conversation Highlights:

{01:00} Leslie’s story

{19:39} Leslie’s career experience and education led to healing and finding purpose.

{26:30} Choosing your attitude and being with other amputees and developing communities

{44:54} Education for everyone. The growth and future of amputee communities

{47:39} Statistics

{57:05} The invisible disability

{1:02:38} The three Ps

 

Contact

Leslie Green

[email protected]

952-221-5186

 

Resources:

Daily Motivational Emails

Weekly Podcast based on issues/topics of interest

Peer mentor program

Amputee Resource Educational Communities (Monday-Friday, and Sunday pm)

 

  • BALANCED Spanish Amputee Community The FIRST Monday of the month –STARTING JANUARY 3rd–11-12:00 pm central time (12-1:00 pm eastern time; 10-11:00 am mountain time, 9-10:00 am pacific time) zone on Zoom. Come and discuss issues related to living with limb loss and limb difference—a Spanish interpreter is present.

 

  • Monday – BALANCED BILATERALS–  –10-11:00 am central time (11-12:00 pm eastern time; 9-10:00 am mountain time, 8-9:00 am pacific time) zone on Zoom

 

  • Monday—BALANCED Diabetics— –7-8:00 pm central time (8-9:00 pm eastern time; 6-7:00 pm mountain time, 5-6:00 pm pacific time) zone on ZoomCome and discuss issues related to living with limb loss and diabetes
  • Tuesday – BALANCED WOUND, CHARCOT, AND PARTIAL AMPUTATION –

10-11:00 am central time (11-12:00 pm eastern, 9-10:00 am  mountain, 8-9:00 am pacific time)  on ZoomCome and discuss issues related to living with chronic wounds, and Partial amputations

 

  • Tuesday—BALANCE— –7-8:00 pm central time (8-9:00 pm eastern time; 6-7:00 pm mountain time, 5-6:00 pm pacific time) zone on Zoom
  • Wednesday BALANCE AND BEYOND (surgery to year one)—

10:00-11:00 am central time11-12:00 am eastern time; 9-10:00 am mountain time, 8-9:00 am pacific time) zone on Zoom

  • Wednesday BALANCED WOMEN—3-4:00 pm  central

(4-5:00 pm eastern, 2-3:00 mountain, 1-2:00pm pacific) on Zoom

  • Wednesday BALANCED MEN— meet from 7-8:00 pm central (8-9:00 pm eastern time; 6-7:00 pm mountain time, 5-6:00 pm pacific time) time zone on Zoom
  • Thursday BALANCED MIDWEEK—need a break?

Join us for some laughter and light-hearted conversation in your day. This group meets from 10-11:00 am central (11-12:00 pm eastern, 9-10:00 am mountain, 8-9:00 am pacific time) on Zoom

  • Thursday BALANCE TOGETHER—the group for spouses, family members, and friends will meet from 7-8:00 pm central (8-9:00 pm eastern time; 6-7:00 pm mountain time, 5-6:00 pm pacific time) time 
  • Friday BALANCE  UP—An amputee community for those living with upper extremity amputations and limb differences.  This group meets from 10:00-11:00 am central (11:00-12:00 pm eastern time; 9:00-10:00 am mountain time, 8:00-9:00 am pacific time) time zone on Zoom
  • Sunday Balanced Beginners Pediatric Community—An amputee community for youth and parents who have a limb difference.  Youth of this group meet from 6:30-7:00 pm and the parents   meet  from 7-8:00 pm central (8-9:00 pm eastern time; 6-7:00 pm mountain time, 5-6:00 pm pacific time)time zone on Zoom
  • Sunday BALANCED Conversations—Come gather together for some casual conversations, and a chance to be focused on the week ahead.  We will meet from 7-8:00 pm central (8-9:00 pm eastern time; 6-7:00 pm mountain time, 5-6:00 pm pacific time) time zone on Zoom
  • Sunday  Balanced Beginners Pediatric Community—An amputee community for youth and parents who have a limb difference.  Youth of this group meet from 6:30-7:00 pm and the parents   meet  from 7-8:00 pm central (8-9:00 pm eastern time; 6-7:00 pm mountain time, 5-6:00 pm pacific time)time zone on Zoom

 

betterhealthandrehab.com

 

 

Skydiving with MS, Dr. Payne's journey: Episode 14

57m · Published 16 Dec 09:00

In today’s Episode, Janice Brown talks with Dr. Payne about his journey with MS. Taking huge jumps literally and figuratively to find purpose in life when living with a chronic illness.

Conversation Highlights:

{01:33} The journey of Dr. Payne

{14:14} Stress and the affects on MS

{22:25} Health Coaches

{25:07} The modes that we work in

{28:00} Empathy, honest and support people

{32:20} Lifting yourself up from your low point

{40:53} Adaptive sports

{48:25} Finding your tribe and purpose

{51:45} The 3 Ps

 

 

Resources:

yourlifelivedwell.com

betterhealthandrehab.com

 

 

From Below the Knee Amputee to Author with Sheila Preston Fitzgerald

50m · Published 02 Dec 09:00

In today’s Episode, Janice Brown talks with author Sheila Preston Fitzgerald about her amputation. Sheila lost her leg in a vehicle accident. While at first, it looked as though her leg had been saved, after a year it had to be amputated. Sheila talks about learning how to adjust to her life, dealing with narcotics, and learning to let people help her. She also talks about creating a new life that you can be proud of.

 

Conversation Highlights:

{00:41} The story of Sheila losing her leg

{07:00} How Sheila finds her strength in God

{08:24} Getting MERSA

{12:28} Navigating the new world of needing to learn about the scientific parts of amputee life

{14:50} Dealing with Narcotics and letting people help you

{18:37} Using crutches

{22:30} Creating a new life you can be proud of

{34:25} Using writing to work though her emotions

{36:40} The Future looks good

{42:55} The 3 Ps

 

 

Resources:

www.OneFootInHeavenOnline.com - this is Sheila's website where you can read more about Shelia’s story, download the first 2 chapters of her book, and purchase her book or hire her for a speaking engagement. 

 

https://www.stumpbutter.com - this is the product Sheila uses to help maintain moisture and skin integrity of her amputated limb, a necessary part of limb loss care when using a prosthesis. 

 

betterhealthandrehab.com

Resiliency

11m · Published 18 Nov 09:00

In today’s Episode, Janice Brown talks about the importance of resiliency. What is resiliency? How do we become resilient?

 

Conversation Highlights:

{00:41} What is resiliency?

{03:01} The importance of being intentional?

{06:14} Be true to who you are.

{07:43} Why do you need to ask for help?

 

Resources:

betterhealthandrehab.com

Beyond the Disability has 51 episodes in total of non- explicit content. Total playtime is 31:04:26. The language of the podcast is English. This podcast has been added on December 25th 2022. It might contain more episodes than the ones shown here. It was last updated on April 5th, 2024 10:49.

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