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Jessica and Caleb

59m · Confessions of a Special Needs Parent · 10 Sep 01:08

September 9, 2021 

In this episode, we talk to Jessica, mom to 10-year-old Caleb who was born with Pierre Robin Sequence, or PRS for short. PRS is a condition with several clinical features: a small lower jaw (micrognathia), displacement of the tongue toward the back of the oral cavity (glossoptosis) and, often but not always, an opening in the roof of the mouth (cleft palate). Jessica had to fight for the diagnosis because the doctors did not believe Caleb fit the criteria. She explains why it's so important to be a voice and advocate for our children. Follow us on Instagram -- @snconfessions. Visit us and give us a ‘like’ on our Facebook page https://www.facebook.com/SNCONFESSIONS/. 

SPONSOR -- Amanda Jessup from @illuminatedsketchbook. Amanda is an author, illustrator, and digital artist who makes beautiful custom sketches. Check out her artwork on Instagram!  

You can now support our podcast and help keep our show going by visiting https://anchor.fm/csnp/support. Monthly donations start at just $0.99 per month. 

If you liked this episode, please share it with your family and friends! 

You can go to https://anchor.fm/csnp/message to leave us a voice message and let us know what you think of the podcast, leave a confession, or just say hi!  

Thanks so much for listening! ~Rachel

--- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/csnp/message Support this podcast: https://anchor.fm/csnp/support

The episode Jessica and Caleb from the podcast Confessions of a Special Needs Parent has a duration of 59:36. It was first published 10 Sep 01:08. The cover art and the content belong to their respective owners.

More episodes from Confessions of a Special Needs Parent

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Welcome to Confessions of a Special Needs Parent!  Being the parent of a special needs child can be very rewarding but it is also extremely demanding, stressful, and can often feel very, very lonely.  It affects every area of our lives and can take a toll on us physically, emotionally, and mentally. Confessions of a Special Needs Parent is a judgment-free platform where we’ll discuss the things we never get to talk about.  Guests will share their struggles, their difficult thoughts and feelings, and anything else that’s been weighing heavily on them.  In each episode, we’ll talk to special-needs parents from all over the world, and listen as they share their experiences; the good and the bad, the ups and the downs, of life as a special needs parent.  We hope you’ll join us! Rachel & Josh --- Send in a voice message: https://anchor.fm/csnp/message Support this podcast: https://anchor.fm/csnp/support

Jessica and Caleb

September 9, 2021 

In this episode, we talk to Jessica, mom to 10-year-old Caleb who was born with Pierre Robin Sequence, or PRS for short. PRS is a condition with several clinical features: a small lower jaw (micrognathia), displacement of the tongue toward the back of the oral cavity (glossoptosis) and, often but not always, an opening in the roof of the mouth (cleft palate). Jessica had to fight for the diagnosis because the doctors did not believe Caleb fit the criteria. She explains why it's so important to be a voice and advocate for our children. Follow us on Instagram -- @snconfessions. Visit us and give us a ‘like’ on our Facebook page https://www.facebook.com/SNCONFESSIONS/. 

SPONSOR -- Amanda Jessup from @illuminatedsketchbook. Amanda is an author, illustrator, and digital artist who makes beautiful custom sketches. Check out her artwork on Instagram!  

You can now support our podcast and help keep our show going by visiting https://anchor.fm/csnp/support. Monthly donations start at just $0.99 per month. 

If you liked this episode, please share it with your family and friends! 

You can go to https://anchor.fm/csnp/message to leave us a voice message and let us know what you think of the podcast, leave a confession, or just say hi!  

Thanks so much for listening! ~Rachel

--- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/csnp/message Support this podcast: https://anchor.fm/csnp/support

Liana and Zoey Part 2

Date:  December 30, 2020

Episode title:  Liana and Zoey Part 2

In this episode, we talk to Liana, mom to 20-month-old Zoey who has Feingold's syndrome, which can manifest with a variety of symptoms ranging from mild to severe. Liana shares with us how her life has changed, her struggles with her mental health, and she shares her best tips for surviving life as a special needs parent.

Learn more about Liana and Zoey, and follow their amazing story on Instagram -- @zoey_goldengirl.

Follow us on Instagram -- @snconfessions.

Visit us and give us a ‘like’ on our Facebook page https://www.facebook.com/snconfessions/.

SPONSOR -- Our sponsor for this episode is Anchor, the easiest way to make a podcast.  The Anchor app is free to download so you can start podcasting right from your phone.  Visit anchor.fm, the app store, or Google play to try it out today.

SPONSOR -- We also work with Amanda Jessup from @illuminatedsketchbook. Amanda is an author, illustrator, and digital artist who makes beautiful custom sketches. Check out her artwork on Instagram!

You can now support our podcast by visiting https://anchor.fm/csnp and clicking the "Support" button to help keep the show going. Monthly donations start at just $0.99 per month.

If you liked this episode, please share it with your family and friends! You can also go to Anchor.fm and click the "Message" button to leave us a voice message. Let us know what you think of the podcast, leave a confession, or just say hi!

Thanks so much for listening!  

--- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/csnp/message Support this podcast: https://anchor.fm/csnp/support

Liana and Zoey Part 1

Date:  December 21, 2020

Episode title:  Liana and Zoey

In this episode, we talk to Liana, mom to 20-month-old Zoey who has Feingold's syndrome, which can manifest with a variety of symptoms ranging from mild to severe. Liana shares with us how her life has changed, her struggles with her mental health, and she shares her best tips for surviving life as a special needs parent. 

Learn more about Liana and Zoey, and follow their amazing story on Instagram -- @zoey_goldengirl.

Follow us on Instagram -- @snconfessions.

Visit us and give us a ‘like’ on our Facebook page https://www.facebook.com/SNCONFESSIONS/.

SPONSOR -- Our sponsor for this episode is Anchor, the easiest way to make a podcast.  The Anchor app is free to download so you can start podcasting right from your phone.  Visit anchor.fm, the app store, or Google play to try it out today.

SPONSOR -- We also work with Amanda Jessup from @illuminatedsketchbook. Amanda is an author, illustrator, and digital artist who makes beautiful custom sketches. Check out her artwork on Instagram! 

You can now support our podcast by visiting https://anchor.fm/csnp and clicking the "Support" button to help keep the show going. Monthly donations start at just $0.99 per month.

If you liked this episode, please share it with your family and friends! You can also go to Anchor.fm and click the "Message" button to leave us a voice message. Let us know what you think of the podcast, leave a confession, or just say hi! 

Thanks so much for listening!  We'll be back again on December 30th with the rest of our interview with Liana.

--- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/csnp/message Support this podcast: https://anchor.fm/csnp/support

Josh and Grayson

Date: October 1, 2020

Episode title: Josh and Grayson

In this episode, we talk to Josh, the co-host of Confessions of a Special Needs Parent, and dad to 1.5-year-old Grayson who has microcephaly, intractable epilepsy, dysphagia, and global developmental delay. Josh talks about how his life has permanently changed since Grayson was born, and shares how his mental health, spirituality, and other areas of his life have been affected. 

Learn more about Josh and follow his story on Instagram @mrrandomdad.

You can now support our podcast by visiting https://anchor.fm/csnp and clicking the "Support" link to help keep the show going. Monthly donations start at just $0.99 per month.

Visit us and give us a ‘like’ on our Facebook page https://www.facebook.com/SNCONFESSIONS/.

Follow us on Instagram @snconfessions.

Our sponsor is Anchor, the easiest way to make a podcast. Download the free Anchor app to your phone or visit anchor.fm to try it out.

If you liked this episode, please share it with your family and friends! 

Thanks so much for listening! 

--- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/csnp/message Support this podcast: https://anchor.fm/csnp/support