1 Intro Welcome to our special needs journey with Fragile X Dad & Mom Podcast!
39m
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Fragile X Dad & Mom
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Hi there! We figure it out! How to podcast? Yeay! On our Intro Episode 1 you will get to know a little about ourselves our family, and what brought us to start this podcast. You will also hear about "THE DIAGNOSIS" of both of our kids. Juan aka(Fragile X Dad), and Erika (Fragile X mom) want to offer you a place to unwind and not feel alone on this special needs parenting journey. We want to share the joys, the struggles, and when sh&t gets real. We are so exited to share and support our fellow special needs moms and dads out there. Often times we as special needs parents feel alone in our journey with our child but we are truly not alone. So many special needs parents are walking on the same path as us. When our both of our kids got diagnosed we felt so alone. We had so many feelings and no one understood what we were going through. We would try to tell others how we felt, but no one truly got it. Until we started meeting families like ours. We hope to offer a safe place where we can share our journeys together. Where we can empower each other to become the best advocates for our children. Find Us on Facebook: https://www.facebook.com/erika.amaya0815 Instagram: https://www.instagram.com/ourfragilexlife/ Youtube at OurFragileXlife: https://www.youtube.com/channel/UCLkcITGVgGUvA4cgghC49Yw?view_as=subscriber Email: [email protected] Blog: https://www.ourfragilexlife.com
The episode 1 Intro Welcome to our special needs journey with Fragile X Dad & Mom Podcast! from the podcast Fragile X Dad & Mom has a duration of
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https://www.barnesandnoble.com/w/family-faith-and-fragile-x-kirsten-fowler/1141735489
Find Kirsten Fowler @https://kirstenfowler.com/
If you would like to be a guest on Fragile X Dad & Mom Podcast email @[email protected]
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6 Dr. Randi Hagerman Special Guest Answering Fragile X Q/A
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5 Communication: AAC device for our nonverbal child.
Our Son Emmett turned 5 years old in March and he is still consider non-verbal. Emmett probably has less than 5 words in his verbal vocabulary. We have tried several different forms of communication for Emmett. We found that using a AAC device (Augmentative and AAC are tools or technology that help people communicate if they can’t (always) rely on speech) was the most helpful for him. Having a non-verbal child is very difficult you don't know when they are hurting and sometimes we do not understand what he needs. Emmett having a form of communication has been a priority for us. With his AAC device he is able to communicate some of his basic needs. This has relief Emmett of frustrations and meltdowns. His meltdowns decreased so much after he started to learn how to use his AAC device.
More information on AAC Device meaning etc. https://www.asha.org/public/speech/disorders/aac/
The program we use for Emmett is called Proloquo2go : https://www.assistiveware.com/learn-aac
Find Us on Facebook: https://www.facebook.com/erika.amaya0815 Instagram: https://www.instagram.com/ourfragilexlife/ Youtube at OurFragileXlife: https://www.youtube.com/channel/UCLkcITGVgGUvA4cgghC49Yw?view_as=subscriber Email: [email protected] Blog: https://www.ourfragilexlife.com Intro&ClosingMusic By:SongTwo-Chord Terror - Pictures (Garage)@ clipdaddy.com
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