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Patient Empowerment, Precision Medicine and Next Generation Approaches in Crohn's and Colitis

1h 32m · Against the Grain · 30 Aug 00:00

Two guests for you today! The first is Andrew Kornfeld ([email protected] | https://www.facebook.com/andrew.kornfeld.18) who holds degrees in neuroscience and psychology from UCSC and has won awards for his work in science education. He has Crohn’s disease and has been able to achieve clinical drug free remission through a protocol he developed after doing his own extensive research with a lot of trial and error. Andrew is the founder of IBD Coach (http://www.ibd.coach) which offers consulting & educational services for IBD patients to develop their own personalized treatment protocol in coordination with their health and medical team.
My other guest is Lucy Mailing who has a PhD in Nutritional Sciences from the University of Illinois where her research focused on understanding how diet and exercise affect the composition and function of the gut microbiome in states of health and disease. She was recently named an Emerging Leader in Nutritional Sciences by the American Society for Nutrition and has authored several peer-reviewed journal articles related to the gut microbiome and health. Lucy is also a staff research associate for Kresser Institute and writes about evidence-based gut and skin health on her blog at NGmedicine.com. Lucy plans to continue her training and complete her MD at the University of Illinois in 2024.

We had a wide ranging discussion about several topics in IBD including the strengths and limitations of conventional medicines, potential to reform IBD care, health insurance, supplements, dietary therapy, mitochondrial function, candida, Genova testing amongst many other topics. As a disclaimer, I am not endorsing or recommending any of the supplements or protocols discussed in this podcast as they have not been FDA approved to treat Crohn’s or colitis. This is an open discussion and should not be interpreted as medical advice.

The episode Patient Empowerment, Precision Medicine and Next Generation Approaches in Crohn's and Colitis from the podcast Against the Grain has a duration of 1:32:53. It was first published 30 Aug 00:00. The cover art and the content belong to their respective owners.

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Episode 33: What Do Your Biopsies Mean? The Pathology of Crohn's and Colitis - Shriram Jakate, MD

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Episode 31: Start Here if you have Crohn's Disease or Ulcerative Colitis!

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Dr. K’s Simplified Prescription to Treat IBD

(it’s not that complicated to know what to do)

1.Start with appropriate and optimized medical therapy, preferably by an IBD specialist (like myself).

2.If this works, follow an IBD diet protocol that speaks to you and that you can realistically follow long term. Bottom line is to take out processed food and being plant based is probably helpful.

3.After at least 1 year, if in deep remission (feeling normal, normal colonoscopy, normal biopsies), continue meds if no side effects or consider de-escalation of medical therapy (ie stopping or reducing dose) and continue diet with careful monitoring strategy for recurrence. If there is disease recurrence, restart medical therapy at direction of IBD specialist and consider changing dietary protocol.

4.If you run out of medical therapies or are stuck on prednisone, surgery is a good option which can not only save your life but improve your quality of life.

5.Besides diet and medication, other complementary and alternative therapies (ie supplements, probiotics, etc) are unlikely to be the miracle you hope for.


That is all!

To schedule a phone conversation with me, go to:
https://calendly.com/samir3/against-the-grain


Episode 30: A Deep Dive into the DINE Study: The Specific Carbohydrate Diet vs Mediterranean Diet for Crohn's Disease

This podcast is a deep dive into the recently published article "A Randomized Trial Comparing the Specific Carbohydrate Diet to a Mediterranean Diet in Adults With Crohn’s Disease." 
(also known as the Dine Study) published by Lewis, et al. 
Article link is here: https://pubmed.ncbi.nlm.nih.gov/34052278/

My guests are Dr. Meghana Doniparthi, gastroenterology fellow at Advocate Lutheran General Hospital and 
Kim Beall, Pharm D.
Kim received her Doctor of Pharmacy from the Medical University of South Carolina (MUSC) and her BS in Pharmacy from Auburn University. She has experience in academics and industry, working at MUSC as part of an Internal Medicine team and serving as adjunct faculty at MUSC College of Pharmacy, then working in Health Sciences with Merck as an academic liaison for those publishing and researching in lipids, hypertension, and heart failure. She has been following research in IBD closely since 2013 with her teenage son’s diagnosis of Crohn’s disease, and has become committed to the advancement of nutritional therapy as treatment. 
Her website is http://www.ntforibd.org



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