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Episode 93: Reproductive Health and AiArthritis Diseases

37m · AiArthritis Voices 360 Talk Show · 07 Jan 11:00

Welcome to AiArthritis Voices 360! In this episode, Leila, the Health Education Manager at AiArthritis, delves into the impact of AiArthritis diseases on reproductive health, sharing insights from the RNS and ACR 2023 conferences. Leila delves into the myriad challenges individuals encounter, including delayed puberty, heightened disease activity during menstrual cycles, and the heightened risks associated with unplanned pregnancies. Navigating the intricate landscape of family planning within the AiArthritis community, we discuss the significance of birth control methods and the impact of medications on fertility.

Drawing from personal experience with lupus, Leila discusses preserving fertility, assisted reproductive technologies, and navigating family planning. Join us on this episode to learn more about reproductive health with AiArthritis diseases and hear Leila’s personal experience with family planning!

If you have questions or would like to share your own family planning story, please feel free to email Leila at [email protected].

Episode Highlights:

  • Explore the latest research insights on how AiArthritis diseases affect reproduction from the RNS and ACR 2023 conferences.
  • Join Leila on a personal journey, navigating reproductive health with Lupus.
  • Uncover challenges in family planning, from medication impacts to the significance of birth control in AiArthritis.
  • Learn about medication effects on fertility and preservation strategies for those with AiArthritis.

Resources & Links:

  • https://mothertobaby.org/
  • http://lupuspregnancy.org/
  • https://www.mamasfacingforward.com/
  • https://www.graceandable.com/pages/chilliredcompressionglove
  • RNS Go With Us video about Lupus and Pregnancy: https://youtu.be/tgeIW0pxF8M?feature=shared
  • ACR Go With Us video about Reproductive Health: https://youtu.be/rYGs1fevQWU?feature=shared
  • Related Episodes:
  • Ep 11: Oh Mama! Pregnancy Planning with a Chronic Illness : https://www.aiarthritis.org/talkshow-ep11
  • Ep 51: Oh Mama! Physical and Emotional Support Postpartum : https://www.aiarthritis.org/talkshow-ep51
  • Ep 89: Surgery with an AiArthritis Disease : https://www.aiarthritis.org/talkshow-ep89

Meet Our Host:

  • Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus Nephritis and Sjögren’s Syndrome. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. Leila is on social media as @LupusLifestyle.Lei sharing bits and pieces about her life with lupus and connecting with others. Connect with her on Instagram or TikTok.

Connect with Leila:

Instagram: @lupus.lifestyle.lei

LinkedIn: www.linkedin.com/in/leila-lagandaon

Facebook: @leilaaiarthritis

TikTok: @lupus.lifestyle.lei

Donate to Support the Show: https://www.aiarthritis.org/donate

Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us ([email protected]). Be sure to check out our top-rated show on Feedspot!

The episode Episode 93: Reproductive Health and AiArthritis Diseases from the podcast AiArthritis Voices 360 Talk Show has a duration of 37:40. It was first published 07 Jan 11:00. The cover art and the content belong to their respective owners.

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Episode Highlights:

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Interested in getting involved?

https://www.aiarthritis.org/aiarthritisday

https://twitter.com/aiarthritisday

https://www.instagram.com/worldaiarthritisday

https://www.facebook.com/AiArthritisDay

Fundraiser: https://givebutter.com/AiArthritisWAiAD24

Race-a-Thon: https://www.facebook.com/events/1511735302713694/

Donate to Support the Show: https://www.aiarthritis.org/donate

Follow AiArthritis on all social media platforms @IFAiArthritis

Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

Connect with our Co-Hosts:

  • Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus Nephritis and Sjögren’s Disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. Leila is on social media as @Lupus.Lifestyle.Lei sharing bits and pieces about her life with lupus and connecting with others. Connect with her on Instagram or TikTok.

Connect with Leila:

Instagram: @lupus.lifestyle.lei

TikTok: @lupus.lifestyle.lei

AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us ([email protected]). Be sure to check out our top-rated show on Feedspot!

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Donate to Support the Show: https://www.aiarthritis.org/donate

Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

Connect with our Co-Hosts:

  • Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus Nephritis and Sjögren’s Disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. Leila is on social media as @Lupus.Lifestyle.Lei sharing bits and pieces about her life with lupus and connecting with others. Connect with her on Instagram or TikTok.

Connect with Leila:

Instagram: @lupus.lifestyle.lei

TikTok: @lupus.lifestyle.lei

  • Kerry is a writer and patient advocate living with fibromyalgia, rheumatoid arthritis, sarcoidosis, Sjögren's syndrome, and small fiber neuropathy/dysautonomia (to name a few). As these conditions took their toll and she became less physically able, Kerry became empowered to use her voice to advocate for herself and for patients like her. She is currently working on "Kaleidoscope," a collection of rare disease stories.

Connect with Kerry:

Instagram: @buttahflyk

Twitter: @buttahflyk

Facebook: @floatlikeabuttahfly

Website: http://bit.ly/floatlikeabuttahfly

  • Estela Mata is the President and co-founder of Looms for Lupus, a non-profit organization that provides Lupus, Fibromyalgia and Mental Health Awareness, advocacy, and support to those living with these conditions, their loved ones, and caregivers.

Connect with Estela:

Instagram: @estela_mata @looms4lupus

LinkedIn: @Estela Mata-Carcamo

AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us ([email protected]). Be sure to check out our top-rated show on Feedspot!

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Donate to Support the Show: https://www.aiarthritis.org/donate

Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

Connect with our Co-Hosts:

  • Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus Nephritis and Sjögren’s Disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. Leila is on social media as @Lupus.Lifestyle.Lei sharing bits and pieces about her life with lupus and connecting with others. Connect with her on Instagram or TikTok.

Connect with Leila:

Instagram: @lupus.lifestyle.lei

TikTok: @lupus.lifestyle.lei

  • Jen

Connect with Jen:

Podcast : My Spoonie Sisters

Instagram: @gracejully_jen

@my_spoonie_sisters

AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us ([email protected]). Be sure to check out our top-rated show on Feedspot!

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Join us as our co-hosts, Tiffany and Kelly, and guests, Dr. Kim and Jerik Leung, explore the important dynamic between patients and doctors in healthcare communication. Through insightful dialogue and shared experiences from both the patient and physician perspective, we uncover strategies to enhance mutual understanding, empowering patients to articulate their needs and doctors to listen attentively. Together, we champion the importance of empathy and effective communication in achieving accurate diagnoses and personalized treatment plans for those navigating AiArthritis diseases.

Episode Highlights:

  • Do patients and rheumatologists' goals and expectations during an office visit align?
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  • Related Episodes:
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  • RheumyRounds: PART TWO The Good, The Bad, & The Ugly - Improving Office Visit Communication : https://www.aiarthritis.org/talkshow-ep81

Donate to Support the Show: https://www.aiarthritis.org/donate

Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

Meet Our Host:

  • Tiffany is the CEO at AiArthritis (International Foundation for Autoimmune & Autoinflammatory Arthritis) and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues.

Connect with Tiffany:

  • Facebook: @tiffanyAiArthritis
  • Twitter: @TiffWRobertson
  • LinkedIn: @TiffanyWestrichRobertson
  • Kelly Conway is a speech-language pathologist, author/blogger, and a patient advocate. She has been living with autoimmune arthritis since age 14 but wasn’t formally diagnosed until age 32. That diagnosis has changed more than 5 times over the past 18 years. Through social media, she connected with fellow patients and cofounded the International Foundation for Autoimmune and Autoinflammatory arthritis. Kelly believes in the power of the patient voice and sharing our stories to raise awareness, education, and advocacy.

Connect with Kelly:

Blog: www.asmyjointsturn.com.

Meet our Guests:

  • Dr. Kim is an Assistant Professor of Medicine and of Pathology & Immunology at Washington University School of Medicine. He also founded and directs the Washington University Lupus Clinic. Dr. Kim’s research group is focused on addressing the unmet needs of human systemic lupus erythematosus (SLE), including understanding and leveraging the biomarker potential of complement activation products, testing novel noninvasive imaging platforms such as photo acoustics to detect lupus nephritis, understanding the relationship between sleep quality and lupus activity, and restoring eroded social support in patients with SLE.

Connect with Dr. Al Kim

Instagram: @washulupusclinic

Twitter : @AlHKim

  • Jerik Leung doctoral student and Woodruff Fellow in the Behavioral, Social, and Health Education Sciences department at Emory University. His current research interests involve characterizing pathways linking structural social determinants of health with individual health outcomes in chronic disease. He is specifically interested in how structural factors shape how people living with chronic disease manage their conditions, interact with their health care providers, access care, and engage with their communities. Jerik is currently working with faculty advisor Dr. Cam Escoffery to evaluate the implementation of several epilepsy self-management programs. For his dissertation research, he intends to focus on issues relevant to people living with lupus.

AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us ([email protected]). Be sure to check out our top-rated show on Feedspot!

Episode 93: Reproductive Health and AiArthritis Diseases

Welcome to AiArthritis Voices 360! In this episode, Leila, the Health Education Manager at AiArthritis, delves into the impact of AiArthritis diseases on reproductive health, sharing insights from the RNS and ACR 2023 conferences. Leila delves into the myriad challenges individuals encounter, including delayed puberty, heightened disease activity during menstrual cycles, and the heightened risks associated with unplanned pregnancies. Navigating the intricate landscape of family planning within the AiArthritis community, we discuss the significance of birth control methods and the impact of medications on fertility.

Drawing from personal experience with lupus, Leila discusses preserving fertility, assisted reproductive technologies, and navigating family planning. Join us on this episode to learn more about reproductive health with AiArthritis diseases and hear Leila’s personal experience with family planning!

If you have questions or would like to share your own family planning story, please feel free to email Leila at [email protected].

Episode Highlights:

  • Explore the latest research insights on how AiArthritis diseases affect reproduction from the RNS and ACR 2023 conferences.
  • Join Leila on a personal journey, navigating reproductive health with Lupus.
  • Uncover challenges in family planning, from medication impacts to the significance of birth control in AiArthritis.
  • Learn about medication effects on fertility and preservation strategies for those with AiArthritis.

Resources & Links:

  • https://mothertobaby.org/
  • http://lupuspregnancy.org/
  • https://www.mamasfacingforward.com/
  • https://www.graceandable.com/pages/chilliredcompressionglove
  • RNS Go With Us video about Lupus and Pregnancy: https://youtu.be/tgeIW0pxF8M?feature=shared
  • ACR Go With Us video about Reproductive Health: https://youtu.be/rYGs1fevQWU?feature=shared
  • Related Episodes:
  • Ep 11: Oh Mama! Pregnancy Planning with a Chronic Illness : https://www.aiarthritis.org/talkshow-ep11
  • Ep 51: Oh Mama! Physical and Emotional Support Postpartum : https://www.aiarthritis.org/talkshow-ep51
  • Ep 89: Surgery with an AiArthritis Disease : https://www.aiarthritis.org/talkshow-ep89

Meet Our Host:

  • Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus Nephritis and Sjögren’s Syndrome. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. Leila is on social media as @LupusLifestyle.Lei sharing bits and pieces about her life with lupus and connecting with others. Connect with her on Instagram or TikTok.

Connect with Leila:

Instagram: @lupus.lifestyle.lei

LinkedIn: www.linkedin.com/in/leila-lagandaon

Facebook: @leilaaiarthritis

TikTok: @lupus.lifestyle.lei

Donate to Support the Show: https://www.aiarthritis.org/donate

Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us ([email protected]). Be sure to check out our top-rated show on Feedspot!

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