53. Getting To Know ME - Chapter 21 (Surviving Winter)

56. Normalising Neurodiversity with Katie

Katie is a founder of Starling CIO - a charity offering support and opportunities to young people with Neurodiversity. A great advocator for neurodiverse individuals, Katie shares what it’s like to live with CPTSD and how her experiences influenced her management tools. We talked about impact of long-term health conditions, Autism, ADHD, Dyslexia and finding support that works for you as an individual.

CPTSD (complex post-traumatic stress disorder) is a condition where you experience some symptoms of PTSD along with some additional symptoms, such as: difficulty controlling your emotions.[Mind.org.uk]

Links and more info:

• Starling CIO
• WHO

Credits:

• Podcast Editor - Kate Mardon

We hope you enjoy this episode 😃

Have a health story to share? Or know someone who would be interested? - We hope to connect with you@Freshrbcic&@Emp_Healthand also stay in touch via [email protected]

What is SEP?

Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactiveprojects. ‘Anelephantin the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants challenge. This phrase has coined the main objective of the SEP.

For more info -https://www.freshrb.com/silentelephantproject

55. Getting To Know ME - Chapter 22 (It’s Like Pulling A Handbrake)

Anna Savory is a creative, writer, comic, and business programme lead at the British Library. She was diagnosed with ME/CFS after battling with the effects of Covid-19 vaccine jab. Anna shades light on her diagnosis journey, support systems and her inspirations in implementing change for individuals with disabilities.

Over 250,000people in England and Wales with ME/CFS, with about 2.4times as many women affected as men. [nice.org.uk]

In this series: Getting to Know ME, we will explore what it's like living with a life-limiting condition ME (Myalgic Encephalomyelitis). We will also reflect on the impact of living with a chronic health condition, hear from those with lived experiences and hear from specialists on their experiences treating this condition.

Links and more info:

• ME association
• Action for ME
• #ME Action
• Article on rare link - https://www.science.org/content/article/rare-link-between-coronavirus-vaccines-and-long-covid-illness-starts-gain-acceptance

We hope you enjoy this episode 😃

Do you have a health story to share? Or know someone who would be interested? - We hope to connect with you@Freshrbcicand@Emp_Healthor stay in touch via [email protected]

What is SEP?

Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactiveprojects. ‘Anelephantin the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants challenge. This phrase has coined the main objective of the SEP.For more info -https://www.freshrb.com/silentelephantproject

54. Chronic Migraines: A Constant Fire Alarm

Rosie has struggled with Chronic Migraines from her teenage years. She uses her lived experiences of health to champion for others living with disabilities. She hopes to make arts and galleries accessible whilst raising awareness of health through her creative works.

Chronic migraine is a debilitating and disabling condition that affects around 2 in 100 people [TheMigrainTrust]

Connect and check out Rosie's works:

• Instagram @_ _ rosie.art
• ‘Self, sense, space’- collaborative creative project.
• The Advent Project - bookbinding tutorial.

More info:

• The Migraine Trust
• The Sunflower Lanyard Scheme

We hope you enjoy this episode 😃

Do you have a health story to share? Or know someone who would be interested? - We hope to connect with you@Freshrbcicand@Emp_Healthor stay in touch via [email protected]

What is SEP? Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactiveprojects. ‘Anelephantin the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants challenge. This phrase has coined the main objective of the SEP. For more info -https://www.freshrb.com/silentelephantproject

53. Getting To Know ME - Chapter 21 (Surviving Winter)

Kondwani reflects on impact of the winter season whilst coping with ME/CFS and fibromyalgia symptoms. He also shares a few thoughts from others with similar experiences.

In this series: Getting to Know ME, we will explore what it's like living with a life-limiting condition ME (Myalgic Encephalomyelitis). We will also reflect on the impact of living with a chronic health condition, hear from those with lived experiences and hear from specialists/charities on their experiences dealing with this condition.

Links to access support::

• ME association
• Action for ME
• #ME Action

We hope you enjoy this episode 😃

Do you have a health story to share? Or know someone who would be interested? - We hope to connect with you@Freshrbcicor@Emp_Healthor stay in touch via [email protected]

What is SEP?
Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactiveprojects. ‘Anelephantin the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants challenge. This phrase has coined the main objective of the SEP.
For more info -https://www.freshrb.com/silentelephantproject

52. Reflecting on 2023 & Health Stories

Amazing how time flies, filled with experiences and new connections with people we meet on our journey of life. As we wind down closing the year in this festive season, I hope I’m not alone in recounting events and milestones over the past months. At this moment being in a reflective mode stands out for me.

Guests featured in these conversations have different experiences of health conditions, and yet their shared stories are filled with wisdom for anyone at any point in life to take inspiration.

Links to full podcast conversations:

• Kelvin - Sickle Cell
• Faith - Alopecia
• Letitia - Multiple Sclerosis (MS)
• Ellen - Arthrogryposis (AMC)
• Anna - Breast Cancer
• Dave - Dyslexia & ADHD
• Russell - ME Association (Russell’s personal story)
• Sonya - Action for ME

Links to ME/CFS charities:

• ME association
• Action for ME

We hope you enjoy this episode 😃

Do you have a health story to share? Or know someone who would be interested? - We hope to connect with you @Freshrbcic or @Emp_Health or stay in touch via email- [email protected]

What is SEP? Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactiveprojects. ‘Anelephantin the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants challenge. This phrase has coined the main objective of the SEP.
For more info - https://www.freshrb.com/silentelephantproject