Developing a Community-Led Rare Disease ELSI Research Agenda
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Pediatric Ethics Podcast
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In this episode, Dr. Jeremy Garrett is joined by Courtney Berrios and Kimberly Freeman. They will be discussing the topic of pediatric rare diseases and the development of a community-led research agenda for better understanding the needs and priorities of patients and families living with rare diseases.
Click here to read Dr. Garrett's article focusing on Developing a community-led rare disease ELSI research agenda
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