Podcast: Amanda on kicking goals and the value of strong support networks
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CFStrong: Inform. Educate. Empower.
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Amanda on kicking goals and the value of strong support networks: part one In this episode of the CFStrong podcast we hear from Amanda about her experience growing up with CF, the importance of her support network and—literally—kicking goals. Amanda discusses playing contact sport, how she dealt with her health taking her away from the sport she loved and her decision to get back on the football field. This is the first episode of our two-episode chat with Amanda. “…as I was growing up, I kind of found that they were the reason why you got through the hospital admissions, or you got through the bad days was purely to have that support system. I have an amazing one. Absolutely amazing, even being 28 and working as hard as what I do, I have some amazing people in my life.” —Amanda Image: Jillo Foreman. Transcript Deidre Gorrie: Hi everyone and welcome to the CFStrong podcast. My name is Deidre Gorrie and I'm the programs and support services manager for Cystic Fibrosis Community Care in New South Wales. I am in the incredibly fortunate position of being able to chat with some of the most amazing adults living with cystic fibrosis from around Australia for the CFStrong podcast series. The CFStrong podcast series covers a broad range of topics including the challenges and successes of those living with cystic fibrosis, where you will hear real firsthand experiences and stories. Deidre: Hi everyone, today we are very fortunate to have Amanda joining us. Amanda is going to chat with us and share a glimpse into her life. Welcome to CFStrong. Amanda, would you like to say a few words to introduce yourself to our lovely listeners today. Amanda: Thank you so much, Deirdre. Thanks for having me on, I'm really excited. My name is Amanda. I am based in Brisbane, Queensland. I'm 28 currently when we're doing this. I have cystic fibrosis, obviously. And I work in the mining industry. But I also play AFL as well. So that's my, my big out from work. I've been working full time since I was 18 and came out of high school. Yeah, that's a bit about me. I guess there's not much to it. Deidre: I think there is, I think there's a lot to it Amanda. I think you've done a good little intro taster. And we'll just peel back some of those layers and find out a little bit more about your work. And I think we've coined the term today working in mining and kicking goals as our general umbrella term. So, we'll dive on, and we'll see exactly what that looks like. So, are you ready for me to kick on into the first question, Amanda? Amanda: Yeah, let's go for it. Deidre: Yeah. All right. Let's start by learning a little bit about your support system, because we all know that supports really are a fantastic resource, irrespective of whether it's in the in the hospital environment or in the home environment. And who has been some of these supports and how they helped you throughout your life to get to where you are today? Amanda: Yeah, it's a really great question. I think for me, as I was growing up, I kind of found that they were the reason why you got through the hospital admissions, or you got through the bad days was purely to have that support system. I have an amazing one. Absolutely amazing, even being 28 and working as hard as what I do, I have some amazing people in my life. Growing up, my mum and my dad both worked full time, worked very hard to make sure that my health was top priority, but also remembering that I have a brother who's two years older. And when my mom and dad went there, my Nan and my Pa jumped in, and we're certainly number ones, when mum and dad weren't there.
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Bryce on travelling with CF Travelling with CF can sometimes feel daunting. There's a lot to think about. But Bryce, a teacher from NSW who lives with CF, says the effort is more than worth it. In this episode, Bryce chats about travelling with CF, the tips and tricks that worked for them and their advice to anyone wanting to travel. Transcript Welcome to the CF Strong Podcast. CF Strong covers the successes and challenges faced by those living with cystic fibrosis. You'll hear first-person stories, conversations with health professionals, friends, and partners. Just a heads up, guests may share their personal views about treatments and health management, but please remember this is not medical advice and you should always follow the advice of your clinic team regarding your health. Sam: Hello and welcome to the CF Strong podcast. Today we have Bryce Blackmore back again. Today we'll be talking about traveling with cystic fibrosis. Myself and Bryce are both pretty avid travelers. We wanted to come together and discuss our experiences and maybe even share some tips and tricks with other people with cystic fibrosis who would like to travel. Like, we want you to know that's possible. Bryce, would you want to start by maybe just telling us a little bit why you believe travel is so important and how come you have done so much travel in your time, and also where you've gone? Bryce: Yes, thank you. Travel is really important. Well, I mean, for multiple reasons. I probably didn't know exactly what I was going to get out of it when I first started traveling. It all began when I was a kid. My parents are very avid travelers as well. They've traveled all over the world, much before I was born, and they continued to do so and so they had that passion already. When I was born, they wanted to continue that. They took us to places like the usual kind of destinations, Bali, et cetera, Thailand, and then that extended to America when I had, I was lucky enough to have a make a wish, to Disneyland when I was a kid, which was extremely lucky. Then it just kind of ignited something inside of me, my family, my brother as well, to just continue traveling. They were always big on going to weird and whacky places and not necessarily all the tourist stuff and getting us to kind of be a little bit independent when we were traveling as we kind of moved up and through the ages. Then, I just wanted to see the world. It was just too much to see and not enough time and I realised that if I'm going to be here, let's just get everything in, pack it in there as much as I possibly can. It just sounded like the best thing to do. Any opportunity that I had, as soon as I finished school, I jumped straight into a degree in teaching and science degree and then immediately, just kept saving money to travel and every holiday break at the end of the year from uni, I'd always just go somewhere different. Third world countries were a great place to start and then extended out to Europe and then a lot of other travels. I've kind of done a lot of Thailand, Vietnam, Cambodia, that area, Bali, Americas, Canada, and then a whole heap of countries through Europe, India, Nepal, yeah a lot of them. I just absolutely love it. I mean, there's just so much to get out of traveling about learning about who you are and then just seeing different people, different traditions, customs, how the world works outside of our little bubble. It's got everything to give and it takes very little away from you. I think it's just worth doing for everybody. Sam: It's interesting actually, because what you were saying before about your family being very avid travelers, it's very similar to me because when I was younger my parents took a massive risk and relocated to America with like three younger kids because they've always been all about travel and adve...