Living with my Rare Diseases and Living Life
3m
·
WONDERGIRLSAIDA
·
Hello my name is saida mahoney I am 25 years old and I am diagnosed with 2 chronic rare diseases I was born with my rare genetic disease Partial Trisomy 8q Duplication Syndrome for short it is called Partial Trisomy Of 8q Syndrome My genetic disease has caused me to have so many difficulties over the years I learned how to fight harder through all the struggles and I learned how to fight through all the ups and downs as well I am also diagnosed with another rare chronic disease called Hidradenitis Suppurativa (HS) for short my HS have caused me to have painful flare ups and pain as well as bleeding as well I have been to the hospital numerous of times due to my HS I also receive injection treatments for my HS as well --- Send in a voice message: https://anchor.fm/wondergirlsaida/message
The episode Living with my Rare Diseases and Living Life from the podcast WONDERGIRLSAIDA has a duration of
3:50. It was first published
More episodes from WONDERGIRLSAIDA
Overcoming My Battles:Living With Asthma & Allergies
Hello everyone in this episode I will be talking about my journey of living with my Allergies and my Asthma and so much more etc --- Send in a voice message: https://podcasters.spotify.com/pod/show/wondergirlsaida/message
Overcoming My Challenges: Living With Foot Drop
Hello everyone it’s me Saida and in this episode I will be talking about why I wear my AFO Braces and so much more etc --- Send in a voice message: https://podcasters.spotify.com/pod/show/wondergirlsaida/message
Shining A Light: Honoring My Idol Lyle Lovett
Hello everyone its me Saida and in this episode I will be honoring my remarkable inspiring idol Lyle Lovett :) --- Send in a voice message: https://podcasters.spotify.com/pod/show/wondergirlsaida/message
Shining A Light: My Life Having My AFO Braces
Hello everyone its me Saida and in this episode I will be talking about how I received my AFO Braces and how they help me and so much more etc --- Send in a voice message: https://podcasters.spotify.com/pod/show/wondergirlsaida/message
Welcome To The Premiere Of Season 12!!
Hello everyone its me Saida and I want to welcome you all to season 12!!!!! --- Send in a voice message: https://podcasters.spotify.com/pod/show/wondergirlsaida/message