The Parkinson's Podcast

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This is a special edition of the Parkinson’s Podcast, presented by the No Barriers Podcast. Join us for a candid conversation with Davis Phinney, co-founder of the Davis Phinney Foundation, and Kevin Kwok, a Foundation board member, as they share their compelling journeys with Parkinson’s.

To learn more about the No Barriers Podcast, please visit:https://nobarriersusa.org/podcast/

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of viewers and listeners like you.If you would like to make a donation, please visit our website.

In this episode, music therapist Hadley Rentz from Music Worx, Inc., explains the benefits of music therapy for people living with Parkinson’s.

To learn more about Music Worx, Inc. and their AudAbility virtual music therapy class for people living with Parkinson's, visit MusicWorx.com. You can subscribe to learn more about Music Worx, Inc. here.

To learn more about the Davis Phinney Foundation programs in Spanish, please visit our Spanish site.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website.

In this episode, Dr. Yasar Torres-Yaghi answers questions about OFF time in Parkinson's, including symptoms, medications, deep brain stimulation, and more.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website.

Wayne Gilbert--a retired teacher and professor of English and educational psychology--was diagnosed with Parkinson's in 2005. Since his diagnosis, he has taken refuge in poetry, having written hundreds of "Parkie" poems, which he refers to as "metaphor medicine." In this episode, Wayne explains the importance of using metaphors in poetry to navigate the complexities of living with Parkinson's and performs a few of his favorite poems.

Loving the Parkinson's Podcast? Listen to more episodes on our website!

The information in this podcast is for general information purposes only. It includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:https://dpf.org/podcastdonation

In this interview, Dr. Apurva Zawar, PT, DPT, discusses one of the most common non-motor symptoms of Parkinson’s, pain, the different types of pain, and where you can find tools and resources to manage it.

Want to watch the video version of this podcast? You can watch it on our YouTube!

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

The information in this podcast is for general information purposes only. It includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

Relevant Links

• Pain in PD
• Self-Assessment Tool
• Dr. Zawar’s Clinic Beyond Rehab
• Dr. Zawar’s program for pain in Parkinson’s
• Contact Dr. Zawar

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this session from the Victory Summit Virtual Event: Sleep and Parkinson's, Dr. Aleksander Videnovic explains sleep attacks, RBD (REM Sleep Disorder), Restless Legs Syndrome (RLS), Insomnia, Daytime Sleepiness, Drowsiness, Fatigue, as well as how to manage these, the importance of understanding and attending to your circadian biology and using things like light and timing of exercise and medications to improve sleep.

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

Deep Brain Stimulation (DBS) is a highly effective and reasonably safe treatment for Parkinson’s; however, it’s also frequently misunderstood by people who have been recently diagnosed. The success stories about how people are sometimes living symptom and medication-free as a result of getting DBS understandably lead many who’ve been newly diagnosed to want to get the treatment as soon as possible.

In an earlier webinar, we invited an esteemed panel of experts to talk about Deep Brain Stimulation (DBS).

In this episode of the Parkinson's Podcast, we spoke with six people with Parkinson’s who’ve had DBS. We discussed:

• How to begin the process

• How to talk to your family and friends about DBS and your hopes and concerns about it

• What to expect during the approvalprocess

• What the surgery is really like (and do you have to shave your head)

• What recovery is like and what kind of support you might need

• The challenges of programming your device and the joy that comes when you get it right

• The myths, challenges, and victories of DBS

And more! We hope you enjoy it!

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

Want to learn more about Deep Brain Stimulation? Check out our DBS Hub here!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Bastiaan Bloem talks with Davis Phinney Foundation Executive Director, Polly Dawkins, about a recent article he co-authored, "The Elephant in the Room: Critical Reflections on Mortality Rates Among Individuals with Parkinson’s Disease."

In the article, Dr. Bloem et al. write, "Although the survival of people with Parkinson's has improved over time, people with Parkinson's still live fewer years than their age- and sex-matched population comparators, albeit at older ages this difference can be small." Dr. Bloem and his co-authors also acknowledge that doctors and researchers "often emphasize the tremendous impact of [Parkinson's] on an individual’s life. However, in public awareness campaigns, we largely avoid discussions on the survival of people with Parkinson’s..."

It's understandable: the topic of mortality and Parkinson's is often painful. However, in this episode of The Parkinson's Podcast, Dr. Bloem argues out that openly acknowledging that Parkinson's shortens lifespans is a good thing for people with Parkinson's for a multiple reasons.

Listen to the episode to hear Dr. Bloem's perspective about multiple topics related to mortality and Parkinson's, including:

• The commonly held view that people die withParkinson's, notfrom Parkinson's
• Pesticides, chemical exposure, and other environmental risks
• Reasons for hope, including specific advice about exercise and diet
• The policy and funding implications of candid discussion of mortality in Parkinson's

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

A previous version of this podcast had sound issues. We apologize and hope you enjoy!

During this episode of The Parkinson's Podcast, panelists from our Living with Parkinson's meetup discussed fear and Parkinson’s. They talked about the difference between shame, guilt, and embarrassment, and they shared the various ways shame shows up for them. Again, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truth and share their journeys with all of us.

In this episode, topics discussed include:

• Feeling a loss of relevance
• Shame when I was diagnosed
• Shame around impulse control
• Side-effects of medications and shame
• Importance of community to overcome shame

and more! We hope you enjoy!

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

Want to come to the next Living with Parkinson's Meetup? Join us on the third Thursday of every month at 1 pm MDT by registering here.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

During this episode of The Parkinson's Podcast, panelists from our Living with Parkinson's meetup discussed fear and Parkinson’s. We addressed kids, relationships, progression, falling, loss of identity, cognition, and more.

In this episode, topics discussed include:

• How to address fear and shame in yourself and with others
• How to handle the fear of being marginalized
• What is the biggest fear you have of the unknown?
• Dealing with the fear and grief of missing out
• Handling the fear of being alone and dating with Parkinson's
• How fear has evolved in our panelists from their diagnosis to the present

and more! We hope you enjoy!

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

Want to come to the next Living with Parkinson's Meetup? Join us on the third Thursday of every month at 1 pm MDT by registering here.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation