The Parkinson's Podcast

In this episode, Dr. Soania Mathur interviews Dr. Michael Okun to discuss the latest therapies for Parkinson’s, including RT-QUIC (Parkinson’s biomarker), subcutaneous dopamine pumps, vibrating gloves, rescue medications, DBS, and more.

Dr. Mathur and Dr. Okun discuss:

• New discoveries in diagnosing Parkinson’s
• What do certain biological markers mean for diagnosis?
• What’s new on the horizon for Parkinson’s treatments?
• The subcutaneous delivery of dopamine replacement
• Transdermal treatment
• Microbiome in Parkinson’s
• Vibration therapy
• The importance of individualized care plans
• How to sort through all the information about Parkinson’s

and more. We hope you enjoy!

In this episode, the Living with Parkinson's Meetup panelists discuss LOVE, relationships, and care partners, whether they be spouses, kids, friends, neighbors, etc. As always, our panelists speak with honesty and emotion, making everyone affected by Parkinson's feel less alone.

In this episode, we discuss:

• Care Partners Who Think Your Parkinson’s is Going to Get Better
• Care Partners Who Don’t Understand Your Symptoms
• Pushing Your Care Partners Away
• The Difficulty of Communication
• Finding a Partner if You’re Single with Parkinson’s
• Partners Who Leave You Because of Your Parkinson’s
• Family Relationships and How Much You Should Expect from Them
• Not Expecting Other People to “Understand”
• Crossing the Boundary from a “Partner” to a “Care Partner”
• Accepting Help When You Need It

and more. We hope you enjoy!

You can find links for more information about topics discussed in this webinar here.

In this episode, the Living with Parkinson's Meetup panelists discuss how their relationships have changed, grown, and faded since being diagnosed with Parkinson's. As always, our panelists speak with honesty and emotion and make everyone affected by Parkinson's feel less alone.

In this episode, we discuss:

• Relationships and Parkinson’s
• How relationships can strengthen after a Parkinson's diagnosis
• How to find people that are going through a similar experience
• Feeling like a burden and wanting to hide
• Finding situations where you feel like you can be yourself and humor
• Getting out of a funk
• Learning to ask for help

and more! We hope you enjoy!

You can find links for more information about topics discussed in this webinar here.

In this episode, occupational therapist Carol Chiang discusses the importance of adding an occupational therapist (OT) to your Parkinson’s care team, common home adaptations that can be made to help you live well with Parkinson’s, and more.

• What is Occupational Therapy?
• Why Can People with Parkinson’s Benefit from OT?
• Carol’s Business, “Evolving Homes” - How Does it Work?
• Practical Tips for Lighting
• The Importance of Contrast in Your House
• Common Bathroom Setup Problems
• Suggested Technology to Help People with Parkinson’s
• Considering Handles and Switches
• Furniture Recommendations
• Surface Considerations
• Recommendations Around Rug

and more! We hope you enjoy!

You can find links for more information about topics discussed in this webinar, including links for the sheets Carol mentions, here: https://davisphinneyfoundation.org/webinar-recording-aging-in-place/

In this week's episode of the Parkinson's Podcast, panelists from our Living with Parkinson's Meetup share how they find hope and inspiration despite the everyday and ever-changing challenges of Parkinson’s disease.

In this episode, panelists share:

• Quotes on Hope and Optimism from the Parkinson’s Community
• How They Practice Being Hopeful, Optimistic, and Grateful
• How Sree Pushes Through Feelings of Defeat
• The Importance of Connecting with People
• How to Find Silver Linings
• Face Freezing and the “Resting B” Face
• The Importance of Humor
• How to Share Non-Motor Symptoms
• The Difficulties of Convincing People You Have Parkinson’s
• How to Communicate Symptoms to People

and more! We hope you enjoy!

In this week's episode of the Parkinson's Podcast, panelists from our Living with Parkinson's Meetup share how they find hope and inspiration despite the everyday and ever-changing challenges of Parkinson’s disease.

In this episode, panelists share:

• Quotes on Hope and Optimism from the Parkinson’s Community
• How They Practice Being Hopeful, Optimistic, and Grateful
• How Sree Pushes Through Feelings of Defeat
• The Importance of Connecting with People
• How to Find Silver Linings
• Face Freezing and the “Resting B” Face
• The Importance of Humor
• How to Share Non-Motor Symptoms
• The Difficulties of Convincing People You Have Parkinson’s
• How to Communicate Symptoms to People

and more! We hope you enjoy!

In this episode, Dr. Annelien Oosterbaan talks about the impact of Young Onset Parkinson’s Disease (YOPD) on women, how women have been left out of the research for so long that their care is impacted, menstrual cycles, pregnancy, breastfeeding, medication, menopause, and much more. She also talks about what it’s like to be a gynecologist, a mother of 4, and have YOPD.

Dr. Oosterbaan answers questions like:

• What happened when you were first diagnosed?
• What was it like with your family when you were first diagnosed?
• What was it like living with Parkinson’s and being pregnant?
• What have you learned about Parkinson’s and pregnancy?
• What do you think healthcare providers get wrong about pregnant women living with Parkinson’s?
• How does menopause affect women with Parkinson's?
• How does DBS affect pregnancy?
• What is Preg Spark?

In this episode, Dr. Rodolfo Savica discusses the biological and social differences of YOPD (young onset Parkinson’s), treatments for YOPD, the challenges of diagnosing YOPD, and more.

Topics discussed include:

• “Early” Versus “Young” Onset Parkinson’s
• Typical Age for Young/Early Onset Parkinson’s
• Treatment Differences for YOPD
• Diagnosing Young/Early Onset Parkinson’s
• Young Onset Parkinson’s and DBS (Deep Brain Stimulation)
• Difference in Progression Between Early Onset and Late Onset Parkinson’s
• Difference in Women with Early Onset Versus Later Onset Parkinson’s
• Exercising with YOPD
• Dementia and Cognitive Decline

and more! We hope you enjoy!

In this episode, Dr. Benzi Kluger, movement disorder specialist, and Kelly Weinschreider, a person living with Parkinson’s, discuss the value of palliative care (aka supportive care or whole person care) from the very beginning of a Parkinson’s journey. We discuss what palliative care is and isn’t, the palliative care approach, how to advocate for care, where to look for care, and more.

The practices of mindfulness, meditation, and relaxation, beneficial to everyone, can be particularly beneficial for people living with Parkinson’s. In this conversation with Dr. Sarah Mulukutla and Dr. Evelyn Ooi, we talk about the value of learning these psychological, emotional, and spiritual tools to manage the challenges that come with living with Parkinson’s.