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AlzAuthors: Untangling Alzheimer's & Dementia

by AlzAuthors Featured on The Whole Care Network

Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com.

Featuring Marianne Sciucco, RN

Podcast producer and host Marianne Sciucco is a co-founder and director at AlzAuthors and a registered nurse who cared for hundreds of dementia patients over a 20-year career. She provided care to her stepfather during his dementia journey and witnessed the painful decline of four beloved aunts to the disease. Her novel, "Blue Hydrangeas, an Alzheimer’s love story," is based on a couple she met through her work and is a testament to the power of love in the face of this heart-wrenching disease.

Learn more about Marianne at AlzAuthors.com.

Purchase "Blue Hydrangeas"

Featuring Christy Byrne Yates, M.S., LEP

Christy is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, “Building a Legacy of Love: Thriving in the Sandwich Generation” recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology.

Learn more about Christy at AlzAuthors.com.

AlzAuthors is an Amazon Affiliate and may receive a small commission on book sales at no cost to you.

Copyright: AlzAuthors

Episodes

Untangling the Expressive Arts for Dementia Care with Daniel C. Potts, MD

35m · Published 08 Feb 11:00

Daniel C. Potts, MD, FAAN is a neurologist, author, poet, educator, and champion of those living with Alzheimer's and other dementias and their care partners. His professional life collided with his personal in 2002, when his father, Lester, was diagnosed with Alzheimer’s. He soon found himself on his own dementia journey, and like many other care partners, became adrift in despair, confusion, grief, and helplessness as he watched his father decline.

Soon after Lester started attending a day care program for people with cognitive impairment, he began to show a previously unknown talent for painting watercolors. This not only delighted him and his family but also others at the center, and he obtained some local notoriety for his colorful artwork. Not long after, Daniel’s own creativity with words emerged, and his poetry became a necessary outlet to release his sorrow over his father’s illness. The transformations he and Lester experienced through their work inspired him to create his foundation, Cognitive Dynamics, which brings the expressive arts to person-centered care, enabling those with cognitive impairment to find new ways to express themselves.

Daniel believes his dementia journey has made him a better physician, and he brings his personal insight and the lessons he’s learned to his practice, where he is passionate about promoting self-preservation and dignity for all persons with cognitive impairment. He is the author of several books of poetry and with his wife, Ellen, has written “A Pocket Guide for the Alzheimer's Caregiver.” He lives in Tuscaloosa, Alabama with Ellen and their two daughters.

Daniel was selected by the American Academy of Neurology as the 2008 Donald M. Palatucci Advocate of the Year; he also has been designated an Architect of Change by Maria Shriver. In 2016, he was chosen by the University of Alabama Medical Alumni Association as a recipient of the Martha Myers Role Model Award, honoring physician alumni whose lives epitomize the ideal of service to their communities.

In this episode we discuss confronting dementia from the unique perspectives of both son and physician, how his father’s dementia almost brought him under and the self-care methods that helped him regain and maintain his physical and emotional balance, and how the expressive arts can bring comfort, peace, and joy to those living with a dementia diagnosis.

Read Dr. Potts’ AlzAuthors post: https://alzauthors.com/2017/02/21/meet-daniel-c-potts-physician-author-and-dementia-advocate/

Start reading “A Pocket Guide for the Alzheimer's Caregiver” with Ellen Potts now!https://amzn.to/3nP2IIB

Note: We are an Amazon Associate and may receive a small commission from book sales.

Connect with Dr. Potts

Blog: https://danielcpotts.wordpress.com/

Facebook: https://www.facebook.com/daniel.potts.92372

Twitter: https://twitter.com/DanielCPotts

LinkedIn: https://www.linkedin.com/in/danielcpotts/

Cognitive Dynamics: www.cognitivedynamics.org

Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

Untangling Lewy Body Disease with Florrie Munat

44m · Published 01 Feb 11:00

Today’s guest is Florrie Munat, author of the memoir “Be Brave: A Wife’s Journey Through Caregiving,” in which she shares the story of caring for her husband, Chuck, during their 6-year ordeal with Lewy Body disease due to an ischemic stroke. "Be Brave" was selected as one of the Top 100 Indie Books of 2017 by Kirkus Reviews, who described it as, "A beautiful, richly panoramic book that should reassure caregivers and delight memoir readers."

Already a published author when their journey started, Florrie began chronicling their new story right away with honesty, humor, compassion, and a desire for self-discovery. After Chuck succumbed to complications from Lewy Body disease, she sifted through her random notes, journal entries, and written observations and wove them into this moving memoir, a tribute to a loving marriage tested by unanticipated and transformational challenges.

Florrie is the author of numerous children’s books, nonfiction articles, short stories, and poems. She worked as a reference and young adult librarian, taught high school English, and worked for a university press. She and Chuck raised four children, and her family hosted four foreign exchange students. She is currently a volunteer radio reader and Young Adult book reviewer; and writes and edits for the Lewy Body Dementia Association and several community groups. She lives on Bainbridge Island, Washington, where she enjoys photography, the New York Times crossword puzzle, hiking, reading, and following Seattle’s underdog sports teams.

Read Florrie’s AlzAuthors post: https://alzauthors.com/2019/01/29/meet-florrie-munat-author-of-be-brave/

Start reading “Be Brave” now! https://amzn.to/3oSap0w

(Note: We are an Amazon Associate and may receive a small commission from book sales.)

Connect with Florrie

Website: https://florriemunat.com/

Twitter: http://www.twitter.com/FlorrieMunat

Facebook: http://www.facebook.com/author.florrie.munat

Instagram: http://www.instagram.com/fmunat/

Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

Untangling Lewy Body Disease with Florrie Munat

44m · Published 01 Feb 11:00

Today’s guest is Florrie Munat, author of the memoir “Be Brave: A Wife’s Journey Through Caregiving,” in which she shares the story of caring for her husband, Chuck, during their 6-year ordeal with Lewy Body disease due to an ischemic stroke. "Be Brave" was selected as one of the Top 100 Indie Books of 2017 by Kirkus Reviews, who described it as, "A beautiful, richly panoramic book that should reassure caregivers and delight memoir readers."

Already a published author when their journey started, Florrie began chronicling their new story right away with honesty, humor, compassion, and a desire for self-discovery. After Chuck succumbed to complications from Lewy Body disease, she sifted through her random notes, journal entries, and written observations and wove them into this moving memoir, a tribute to a loving marriage tested by unanticipated and transformational challenges.

Florrie is the author of numerous children’s books, nonfiction articles, short stories, and poems. She worked as a reference and young adult librarian, taught high school English, and worked for a university press. She and Chuck raised four children, and her family hosted four foreign exchange students. She is currently a volunteer radio reader and Young Adult book reviewer; and writes and edits for the Lewy Body Dementia Association and several community groups. She lives on Bainbridge Island, Washington, where she enjoys photography, the New York Times crossword puzzle, hiking, reading, and following Seattle’s underdog sports teams.

Read Florrie’s AlzAuthors post: https://alzauthors.com/2019/01/29/meet-florrie-munat-author-of-be-brave/

Start reading “Be Brave” now! https://amzn.to/3oSap0w

(Note: We are an Amazon Associate and may receive a small commission from book sales.)

Connect with Florrie

Website: https://florriemunat.com/

Twitter: http://www.twitter.com/FlorrieMunat

Facebook: http://www.facebook.com/author.florrie.munat

Instagram: http://www.instagram.com/fmunat/

Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

Untangling Dementia Themes in Teen Fiction with Krysten Lindsay Hager

1h 7m · Published 25 Jan 11:00

Today’s guest is Krysten Lindsay Hager, who writes funny, charming, irresistible dramas for tweens and teens. Her stories are about friendship, self-esteem, fitting in, frenemies, crushes, fame, first loves, and values. She also writes about dementia, especially Lewy Body, in the teen novels “Competing with the Star,” a Readers' Favorite Book Award Finalist, and “Dating the It Guy.”

Krysten’s experience with dementia started in her sophomore year in high school when her grandfather was diagnosed with “hardening of the arteries.” She helped her parents provide care for him, which affected her college years and led her to write “Competing with the Star.” Many years later her father was diagnosed with Lewy Body dementia which inspired “Dating the It Guy.”

In this episode we discuss why fiction is an excellent medium for educating teens about serious topics, why Robin Williams’ story helped her understood her father’s illness, how the vulnerability of dementia affects loving relationships, and the positivity to be found in saying “the long goodbye.”

Read Krysten’s AlzAuthors Post: https://alzauthors.com/2017/02/01/krysten-lindsay-hager-how-young-adult-fiction-helps-heal-and-educate/

Start reading “Competing with the Star” https://amzn.to/2JJjIAs and “Dating the It Guy” https://amzn.to/33CEcCk now!

(Note: We are an Amazon Associate and may receive a small commission from book sales.)

Connect with Krysten Lindsay Hager

Website: https://www.krystenlindsay.com/

Facebook: https://www.facebook.com/KrystenLindsayHagerAuthor

Instagram: https://www.instagram.com/krystenlindsay/

Twitter: https://twitter.com/KrystenLindsay

Pinterest: https://www.pinterest.com/krystenlindsay/

YouTube: https://www.youtube.com/channel/UClIQCsRcKc97-25oXvabZ8A

Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, marketing expenditures to promote our authors, improve our reach, expand our content, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

Untangling Dementia Themes in Teen Fiction with Krysten Lindsay Hager

1h 7m · Published 25 Jan 11:00

Today’s guest is Krysten Lindsay Hager, who writes funny, charming, irresistible dramas for tweens and teens. Her stories are about friendship, self-esteem, fitting in, frenemies, crushes, fame, first loves, and values. She also writes about dementia, especially Lewy Body, in the teen novels “Competing with the Star,” a Readers' Favorite Book Award Finalist, and “Dating the It Guy.”

Krysten’s experience with dementia started in her sophomore year in high school when her grandfather was diagnosed with “hardening of the arteries.” She helped her parents provide care for him, which affected her college years and led her to write “Competing with the Star.” Many years later her father was diagnosed with Lewy Body dementia which inspired “Dating the It Guy.”

In this episode we discuss why fiction is an excellent medium for educating teens about serious topics, why Robin Williams’ story helped her understood her father’s illness, how the vulnerability of dementia affects loving relationships, and the positivity to be found in saying “the long goodbye.”

Read Krysten’s AlzAuthors Post: https://alzauthors.com/2017/02/01/krysten-lindsay-hager-how-young-adult-fiction-helps-heal-and-educate/

Start reading “Competing with the Star” https://amzn.to/2JJjIAs and “Dating the It Guy” https://amzn.to/33CEcCk now!

(Note: We are an Amazon Associate and may receive a small commission from book sales.)

Connect with Krysten Lindsay Hager

Website: https://www.krystenlindsay.com/

Facebook: https://www.facebook.com/KrystenLindsayHagerAuthor

Instagram: https://www.instagram.com/krystenlindsay/

Twitter: https://twitter.com/KrystenLindsay

Pinterest: https://www.pinterest.com/krystenlindsay/

YouTube: https://www.youtube.com/channel/UClIQCsRcKc97-25oXvabZ8A

Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, marketing expenditures to promote our authors, improve our reach, expand our content, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

Untangling Caring for Two Parents Diagnosed at the Same Time with Jean Lee

41m · Published 18 Jan 11:00

Jean Lee is a co-founder and director of AlzAuthors. and author of the brave, inspirational memoir "Alzheimer’s Daughter," written from a journal she kept during her years of caring for both parents diagnosed with Alzheimer's on the same day. At the time, she was working full-time as an elementary school teacher and took over their care. Throughout her caregiving years she experienced the heartbreak, confusion, and exhaustion common to all dementia caregivers. Readers of her deeply personal and painfully written memoir travel a journey beginning with a sweet WWII romance through family life, aging, and a daughter’s first suspicions that something’s not right with Mom and Dad, ending with her parent’s final breaths. “I wrote the book I needed to read while caregiving for my parents,” she says. "Alzheimer’s Daughter" is a beautiful but poignant tribute to her parents and a source of support for caregivers everywhere. Jean is also the author of a delightful series of children’s books based upon the family dogs: "Lexi’s Triplets," "Lexi’s Litter of Three," and "Julia’s Journey to her Forever Home."

Read Jean’s AlzAuthors blog post: https://alzauthors.com/2018/05/08/jean-lee-author-of-alzheimers-daughter/

Purchase Alzheimer’s Daughter: http://.to/2rVqJjm

(Note: We are an Amazon Associate and may receive a small commission from book sales.)

Follow Jean Lee

Alzheimersdaughter.com: https://jeanllee.blogspot.com/

Alzheimer’s Daughter on Facebook: https://www.facebook.com/AlzheimersDaughter/

Twitter: https://twitter.com/JeanLee18

Instagram: https://www.instagram.com/jeanlee18/

LinkedIn: https://www.linkedin.com/in/jean-lee-629b88180/

Pinterest: https://www.pinterest.com/jeanleeauthor/

Goodreads: https://www.goodreads.com/author/show/770111.Jean_Lee

Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, marketing expenditures to improve our reach, expand our content, and promote our authors, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

Untangling Caring for Two Parents Diagnosed at the Same Time with Jean Lee

41m · Published 18 Jan 11:00

Jean Lee is a co-founder and director of AlzAuthors. and author of the brave, inspirational memoir "Alzheimer’s Daughter," written from a journal she kept during her years of caring for both parents diagnosed with Alzheimer's on the same day. At the time, she was working full-time as an elementary school teacher and took over their care. Throughout her caregiving years she experienced the heartbreak, confusion, and exhaustion common to all dementia caregivers. Readers of her deeply personal and painfully written memoir travel a journey beginning with a sweet WWII romance through family life, aging, and a daughter’s first suspicions that something’s not right with Mom and Dad, ending with her parent’s final breaths. “I wrote the book I needed to read while caregiving for my parents,” she says. "Alzheimer’s Daughter" is a beautiful but poignant tribute to her parents and a source of support for caregivers everywhere. Jean is also the author of a delightful series of children’s books based upon the family dogs: "Lexi’s Triplets," "Lexi’s Litter of Three," and "Julia’s Journey to her Forever Home."

Read Jean’s AlzAuthors blog post: https://alzauthors.com/2018/05/08/jean-lee-author-of-alzheimers-daughter/

Purchase Alzheimer’s Daughter: http://.to/2rVqJjm

(Note: We are an Amazon Associate and may receive a small commission from book sales.)

Follow Jean Lee

Alzheimersdaughter.com: https://jeanllee.blogspot.com/

Alzheimer’s Daughter on Facebook: https://www.facebook.com/AlzheimersDaughter/

Twitter: https://twitter.com/JeanLee18

Instagram: https://www.instagram.com/jeanlee18/

LinkedIn: https://www.linkedin.com/in/jean-lee-629b88180/

Pinterest: https://www.pinterest.com/jeanleeauthor/

Goodreads: https://www.goodreads.com/author/show/770111.Jean_Lee

Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, marketing expenditures to improve our reach, expand our content, and promote our authors, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

Untangling Working and Writing While Caring for Mom with Robin Perini

57m · Published 11 Jan 11:00

Robin Perini is an award-winning author of heart-stopping suspense and poignant romance novels. When not writing she works for an advanced technology corporation. When not writing or working she helps care for her mother who has Alzheimer’s and lives just across the street with Robin’s father. An advocate for Alzheimer’s education, Robin has woven the topic into two of her novels, “Forgotten Secrets” and “Forgotten Legacy,” books one and two in her Singing River Series. Her goal was to both entertain and educate her readers about the disease, and to raise needed funds for the Alzheimer’s Association. She happily donates a portion of the royalties from these books to the organization.

As a writer, Robin is devoted to giving her readers fast-paced, high stakes adventures with a love story sure to melt their hearts. Her strong characters and tightly woven plots made her a seven-time Romance Writers of America Golden Heart® finalist. In 2011, she won the Golden Heart®, and that title became her first Harlequin Intrigue novel, “Finding Her Son.” There are now ten. She’s written two other series, including Montgomery Justice and Carder Texas Connections, as well as several stand-alone novels.

Robin resides in the southwestern United States. In her spare time, you might find her giving one of her many nationally acclaimed writing workshops or training in competitive small-bore rifle silhouette shooting. She’s a voracious reader and a die-hard fan of the T.V. series, BONES. She’s also an AlzAuthors Associate, bringing her advanced tech skills to cataloguing our bookstore, a work-in-progress.

In this episode we discuss how her mom’s Alzheimer’s diagnosis changed her life, the challenges of caring for her mom at home while balancing work and writing, thankfulness, and the joys of finding the best home healthcare provider you can find.

Start reading “Forgotten Secrets” https://amzn.to/3fUX30a and “Forgotten Legacy” https://amzn.to/3muikQW now.

(Note: We are an Amazon Associate and may receive a small commission from book sales.)

Read Robin's AlzAuthors blog post: https://alzauthors.com/2016/12/07/meet-robin-perini-author-of-forgotten-secrets-more-than-a-romantic-mysterythriller/

Connect with Robin

Website: http://www.robinperini.com

Facebook: http://www.facebook.com/RobinPeriniAuthor/

Goodreads: https://www.goodreads.com/author/show/4900163.Robin_Perini

Pinterest: https://www.pinterest.com/robinperini/_saved/

Twitter: https://twitter.com/RobinPerini

Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, marketing expenditures to improve our reach, expand our content, and promote our authors, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

Untangling Working and Writing While Caring for Mom with Robin Perini

57m · Published 11 Jan 11:00

Robin Perini is an award-winning author of heart-stopping suspense and poignant romance novels. When not writing she works for an advanced technology corporation. When not writing or working she helps care for her mother who has Alzheimer’s and lives just across the street with Robin’s father. An advocate for Alzheimer’s education, Robin has woven the topic into two of her novels, “Forgotten Secrets” and “Forgotten Legacy,” books one and two in her Singing River Series. Her goal was to both entertain and educate her readers about the disease, and to raise needed funds for the Alzheimer’s Association. She happily donates a portion of the royalties from these books to the organization.

As a writer, Robin is devoted to giving her readers fast-paced, high stakes adventures with a love story sure to melt their hearts. Her strong characters and tightly woven plots made her a seven-time Romance Writers of America Golden Heart® finalist. In 2011, she won the Golden Heart®, and that title became her first Harlequin Intrigue novel, “Finding Her Son.” There are now ten. She’s written two other series, including Montgomery Justice and Carder Texas Connections, as well as several stand-alone novels.

Robin resides in the southwestern United States. In her spare time, you might find her giving one of her many nationally acclaimed writing workshops or training in competitive small-bore rifle silhouette shooting. She’s a voracious reader and a die-hard fan of the T.V. series, BONES. She’s also an AlzAuthors Associate, bringing her advanced tech skills to cataloguing our bookstore, a work-in-progress.

In this episode we discuss how her mom’s Alzheimer’s diagnosis changed her life, the challenges of caring for her mom at home while balancing work and writing, thankfulness, and the joys of finding the best home healthcare provider you can find.

Start reading “Forgotten Secrets” https://amzn.to/3fUX30a and “Forgotten Legacy” https://amzn.to/3muikQW now.

(Note: We are an Amazon Associate and may receive a small commission from book sales.)

Read Robin's AlzAuthors blog post: https://alzauthors.com/2016/12/07/meet-robin-perini-author-of-forgotten-secrets-more-than-a-romantic-mysterythriller/

Connect with Robin

Website: http://www.robinperini.com

Facebook: http://www.facebook.com/RobinPeriniAuthor/

Goodreads: https://www.goodreads.com/author/show/4900163.Robin_Perini

Pinterest: https://www.pinterest.com/robinperini/_saved/

Twitter: https://twitter.com/RobinPerini

Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, marketing expenditures to improve our reach, expand our content, and promote our authors, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

Untangling Life From the Corner Office to Alzheimer's with Michael Ellenbogen

37m · Published 04 Jan 11:00

Michael Ellenbogen was diagnosed with early onset Alzheimer’s at the age of 49. Prior to his diagnosis, Michael was a network operations manager for a Fortune 500 financial institution until difficulty with work-related tasks led to an unwanted early retirement. He is a passionate, outspoken dementia advocate who pulls no punches. In this episode we discuss the trials of seeking a medical diagnosis, living with early onset Alzheimer's, and his advocacy work that brought him to the halls of Congress and the World Health Organization.

As a world-renowned International Dementia Advocate and Connecter, Michael has been featured in nationally syndicated TV, radio, and other media outlets. He has written for blogs, newspapers, journals, and websites.

He served on the Pennsylvania Alzheimer's Disease Planning Committee and other advisory councils. He was a regular speaker at the Advisory Council on Alzheimer's Research, Care and Services and has been featured in the Alzheimer's Disease International's 2012 World Alzheimer's Report. He represented the U.S./World for people living with dementia at the World Health Organization. He is a world-renowned speaker and has shared his personal perspective with Alzheimer’s and dementia advocacy groups and research organizations, including medical students at Harvard and the United States Congress.

He is interested in motivating those with Alzheimer’s to raise their voices and reduce the stigma surrounding the disease. He believes his diagnosis is not the end for him, because he has so much more to give to the world. Michael wrote about his journey in his latest book entitled “From the Corner Office to Alzheimer's.”

Read Michael’s AlzAuthors blog post: https://alzauthors.com/2016/06/07/meet-michael-ellenbogan-author-of-from-the-corner-office-to-alzheimers/

Purchase From the Corner Office to Alzheimer’s: https://amzn.to/2UMsRKU

Note: We are an Amazon Associate and may receive a small commission from book sales.

Read “Dementia is Not the Problem, it’s the People Around Us,” in

EC Psychology and Psychiatry: https://www.ecronicon.com/ecpp/pdf/ECPP-09-00662.pdf

Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, marketing expenditures to improve our reach, expand our content, and promote our authors, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/

Thank you for listening.

AlzAuthors: Untangling Alzheimer's & Dementia has 135 episodes in total of non- explicit content. Total playtime is 125:10:26. The language of the podcast is English. This podcast has been added on July 28th 2022. It might contain more episodes than the ones shown here. It was last updated on May 16th, 2024 17:40.

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