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AlzAuthors: Untangling Alzheimer's & Dementia

by AlzAuthors Featured on The Whole Care Network

Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com.

Featuring Marianne Sciucco, RN

Podcast producer and host Marianne Sciucco is a co-founder and director at AlzAuthors and a registered nurse who cared for hundreds of dementia patients over a 20-year career. She provided care to her stepfather during his dementia journey and witnessed the painful decline of four beloved aunts to the disease. Her novel, "Blue Hydrangeas, an Alzheimer’s love story," is based on a couple she met through her work and is a testament to the power of love in the face of this heart-wrenching disease.

Learn more about Marianne at AlzAuthors.com.

Purchase "Blue Hydrangeas"

Featuring Christy Byrne Yates, M.S., LEP

Christy is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, “Building a Legacy of Love: Thriving in the Sandwich Generation” recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology.

Learn more about Christy at AlzAuthors.com.

AlzAuthors is an Amazon Affiliate and may receive a small commission on book sales at no cost to you.

Copyright: AlzAuthors

Episodes

Dementia Care Around the World, Part One

45m · Published 04 Oct 23:00

In this AlzAuthors Live! Virtual Q&A we explore the similarities and differences caregivers and those living with dementia encounter as they seek care and search for solutions to the many questions and problems a dementia diagnosis brings. The authors featured in this event represent the United States, Canada, and Argentina. We hope their stories will inspire and empower you on your own dementia journey.

Topics included:

• obtaining a diagnosis

• accessing care

• community resources

• financial concerns

• insurance considerations

• home care, assisted living, long-term care

• stigma surrounding a dementia diagnosis

This discussion was recorded on September 13th, 2022.

Note: This event was originally scheduled with three of our authors - Cindy Weinstein (US), Donna Thomson (Canada), and Katya De Luisa (Costa Rica) - but heavy rainstorms prevented Donna and Katya from participating, although we did get to hear from Donna briefly. Both Donna and Katya have been on the podcast in the past. You can find their episodes here: https://alzauthors.com/podcast . Thankfully, many of our participants shared their experiences and we had a well-rounded discussion.

The speakers:

Marianne Sciucco, New York, US:

https://alzauthors.com/2018/05/02/meet-marianne-sciucco-alzauthors-admin-and-author-of-blue-hydrangeas-an-alzheimers-love-story/

Cindy Weinstein, California, US:

https://alzauthors.com/2022/01/18/cindy-weinstein-finding-right-words/

Donna Thomson, Canada:

https://alzauthors.com/2020/02/04/unexpected-journey-caring-thomson-white/

Ethelle Lord, Canada:

https://innocareofdementia.com/news/ethelle-lord-the-warrior-of-dementia-who-is-she/

Virginia Naeve, California, US:

https://anewpathformom.com/

Dennis Dulniak, Florida, US: https://www.nanasbooks.org/

Luis Cordero, Argentina and Chicago: https://www.davidson.edu/news/2022/04/19/watson-fellows-ready-tackle-questions-health-and-well-being-around-world

Vicki Tapia, Montana, US: https://alzauthors.com/2018/05/15/meet-vicki-tapia-alzauthors-admin-and-author-of-somebody-stole-my-iron/

We hope to revisit this subject with authors from other countries in the future, so please keep in touch with us at https://alzauthors.com.

You can follow us on social media - Facebook, Twitter, Instagram, and LinkedIn - to stay updated on events, new authors, books, and resources.

Remember: You are not alone. One can sing a lonely song, but we chose to form a choir, and create harmony.

About the Podcast

Our podcast features authors who share their dementia journeys, talk about what led them to tell their stories in whatever medium they’ve chosen, and offer unique and painfully earned insights into life with dementia. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

AlzAuthors.com

Want to be on the podcast? Here’s what you need to know.

Dementia Care Around the World, Part One

45m · Published 04 Oct 23:00

In this AlzAuthors Live! Virtual Q&A we explore the similarities and differences caregivers and those living with dementia encounter as they seek care and search for solutions to the many questions and problems a dementia diagnosis brings. The authors featured in this event represent the United States, Canada, and Argentina. We hope their stories will inspire and empower you on your own dementia journey.

Topics included:

• obtaining a diagnosis

• accessing care

• community resources

• financial concerns

• insurance considerations

• home care, assisted living, long-term care

• stigma surrounding a dementia diagnosis

This discussion was recorded on September 13th, 2022.

Note: This event was originally scheduled with three of our authors - Cindy Weinstein (US), Donna Thomson (Canada), and Katya De Luisa (Costa Rica) - but heavy rainstorms prevented Donna and Katya from participating, although we did get to hear from Donna briefly. Both Donna and Katya have been on the podcast in the past. You can find their episodes here: https://alzauthors.com/podcast . Thankfully, many of our participants shared their experiences and we had a well-rounded discussion.

The speakers:

Marianne Sciucco, New York, US:

https://alzauthors.com/2018/05/02/meet-marianne-sciucco-alzauthors-admin-and-author-of-blue-hydrangeas-an-alzheimers-love-story/

Cindy Weinstein, California, US:

https://alzauthors.com/2022/01/18/cindy-weinstein-finding-right-words/

Donna Thomson, Canada:

https://alzauthors.com/2020/02/04/unexpected-journey-caring-thomson-white/

Ethelle Lord, Canada:

https://innocareofdementia.com/news/ethelle-lord-the-warrior-of-dementia-who-is-she/

Virginia Naeve, California, US:

https://anewpathformom.com/

Dennis Dulniak, Florida, US: https://www.nanasbooks.org/

Luis Cordero, Argentina and Chicago: https://www.davidson.edu/news/2022/04/19/watson-fellows-ready-tackle-questions-health-and-well-being-around-world

Vicki Tapia, Montana, US: https://alzauthors.com/2018/05/15/meet-vicki-tapia-alzauthors-admin-and-author-of-somebody-stole-my-iron/

We hope to revisit this subject with authors from other countries in the future, so please keep in touch with us at https://alzauthors.com.

You can follow us on social media - Facebook, Twitter, Instagram, and LinkedIn - to stay updated on events, new authors, books, and resources.

Remember: You are not alone. One can sing a lonely song, but we chose to form a choir, and create harmony.

About the Podcast

Our podcast features authors who share their dementia journeys, talk about what led them to tell their stories in whatever medium they’ve chosen, and offer unique and painfully earned insights into life with dementia. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

AlzAuthors.com

Want to be on the podcast? Here’s what you need to know.

Susie Singer Carter Untangles Alzheimer's in Film and Podcasts

57m · Published 20 Sep 23:00

Susie Singer Carter is a Los Angeles-based creative specializing in film and podcasting. She’s a writer, director, producer, and actress. She’s also an advocate for dementia caregivers having been on a journey with her own mother for 16 years. This inspired her to write, direct and produce the 2018 Oscar Qualified short film, “My Mom and the Girl,” starring Valerie Harper in her final performance.

She’s also the host and producer of the award-winning podcast “Love Conquers Alz,” launched in December 2019, which received Best Podcast 2020 from the New Media Film Festival for Episode 6 featuring Leeza Gibbons.

Susie is proud to have served as one of the faces seen in several awareness campaigns for Alzheimer’s Los Angeles, where she also trained to be a volunteer speaker.

Unfortunately, Susie's beloved mother Norma Pecora passed away after we recorded this interview.

In this episode, we discuss her long, exhausting, enriching dementia journey, how it made her a “better person,” and the idea that Alzheimer’s is sort of like The Curious Case of Benjamin Button.

After the Podcast:

Please leave a review and share this podcast with a caregiver or loved one on a dementia journey.

Read Susie’s AlzAuthors post

Watch My Mom and the Girl

Trailer:

Vimeo

YouTube

Complete film:

Amazon

Apple TV

Listen to or watch“Love Conquers Alz”

Connect with Susie Singer Carter:

IMDB

WEBSITE

MY MOM AND THE GIRL

FACEBOOK

TWITTER

INSTAGRAM

LINKEDIN

WIKIPEDIA

LOVE CONQUERS ALZ LINKS

I LOVE LUCIFER LINKS

Other references

The Curious Case of Benjamin Button

Dopesick

***

About the Podcast

Our podcast features authors who share their dementia journeys, talk about what led them to tell their stories in whatever medium they’ve chosen, and offer unique and painfully earned insights into life with dementia. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

AlzAuthors.com

Want to be on the podcast? Here’s what you need to know.

AlzAuthors Untangles A Collection of Stories to Support Your Caregiving Journey

1h 5m · Published 07 Sep 00:00

The podcast you are about to listen to is a recording of an event we did with Kensington Senior Living in June, 2022. "On the Same Page this Summer: A Collection of Stories to Support You on Your Caregiving Journey" features four authors discussing their personal dementia experiences. You'll hear from a young woman whose mother was diagnosed with early onset Alzheimer's when she was just 25; a professional in dementia care with strategies to help you manage your own situation; a mom in the "sandwich generation" who shares how she balanced care between her school-age children and her parents with dementia; and a psychologist who has investigated and encountered "shared death experiences." This is an insightful, inspiring episode and you're sure to walk away with greater confidence and knowledge to guide your own dementia journey. Please join us for our next live event on September 13th at 2 pm eastern time when we discuss Dementia Care Around the World with three authors representing the United States, Canada, and Costa Rica. For more details, visit our website.

Watch this panel presentation on YouTube

After the Podcast

Learn more about these authors:

Christy Byrne Yates

Christy Yates Helps Caregivers Raising Children Ease the Squeeze

AlzAuthors and HFC Present Summer Book Series

Podcast:

Christy Byrne Yates, MS Untangles Dementia Care and the Sandwich Generation

Lauren Dykovitz

Millennial Caregiver Writes About Mom With Early Onset Alzheimer’s

Lauren Dykovitz Shares Story of Mother’s Final Dementia Days

Three AlzAuthors Featured in Chicken Soup for Soul Book

Podcast:

Untangling Life as a Millennial Caregiver with Lauren Dykovitz

Tammy Anastasia

Tami Anastasia Comes Full Circle with the Dementia Journey

William Peters

SharedCrossing.com

Note: We are an Amazon Associate and may receive a small commission from book sales.

Visit Kensington Senior Living, a premier senior living operator and developer bringing the highest quality senior care to America’s most sought-after locations.

***

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personalexperience to light the way for others. Our podcast introducesyou to our authors who share their stories and insights to provide knowledge, comfort, and support.Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Also on UK Health Radio and The NYC Podcast Network

Want to be on the podcast? Here’s what you need to know.

Thanks for listening.

AlzAuthors.com

Shop our Store

Daniel Gibbs, MD Untangles His Personal Battle Against Alzheimer's Disease

1h 12m · Published 24 Aug 00:00

Daniel Gibbs is a retired neurologist confronting his own early onset Alzheimer’s. His is a unique perspective once the doctor diagnosing other people’s cognitive issues and now the patient facing his own. Alzheimer’s disease was never on his radar, he says, because both of his parents died in midlife from cancer, but he unexpectedly discovered through genealogical research that he has two copies of the APOE-4 allele, putting him at very high risk for dementia. He has written his story in a memoir, A Tattoo on My Brain: A Neurologist’s Personal Battle Against Alzheimer’s Disease, where he reveals his personal story and explains how it is possible to decrease the risk and slow the progression of the disease through lifestyle modifications, especially when started early.

In this episode, we discuss the value of testing for the Alzheimer’s gene, the importance of life plans, concerns regarding work and retirement, and the Viacom documentary currently in production about his dementia journey.

After the Podcast

Read Dr. Gibbs AlzAuthors post: Neurologist, Dr. Daniel Gibbs, Reveals His Personal Story in A Tattoo on my Brain

Start reading A Tattoo on My Brain https://amzn.to/3zD6IlO

Note: We are an Amazon Associate and may receive a small commission from book sales.

Other authors/books mentioned:

Thomas DeBaggio, Losing My Mind: An Intimate Look at Life with Alzheimer's

Slow Puncture: A Memoir About Living Well with Early Onset Alzheimer’s by Peter Berry and Deb Bunt

Wendy Mitchell Writes Courageous Memoir of Younger Onset Dementia: Somebody I Used to Know

Tracey Shorthouse’s Poetry Provides a Glimpse into Early Onset Alzheimer’s

Laurette Klier Creates Nana’s Books: Nostalgic Picture Books for Seniors

Susan Ostrowski Helps Seniors with Cognitive Issues Enjoy Reading Again

Greg O’Brien, On Pluto: Inside the Mind of Alzheimer’s

Greg O’Brien, Psychology Today articles

Columbia Kindred

Daniel Alejandro Drubach, MD, FAAN, Twilight and Me: A Soliloquy (Lewy Body disease article mentioned at end)

Connect with Dr. Gibbs

Website

***

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personalexperience to light the way for others. Our podcast introducesyou to our authors who share their stories and insights to provide knowledge, comfort, and support.Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

We are a WCN Featured Podcast.

Proud to be on The Health Podcast Network.

Want to be on the podcast? Here’s what you need to know.

Thanks for listening.

AlzAuthors.com

Shop our Store

Patti Callahan Henry Untangles What it Means to Remember

44m · Published 09 Aug 23:51

What are memories? Do our memories make us who we are? What happens to “us” when our memory fails, and cognitive decline ensues? I discussed these profound questions with one of my favorite authors, Patti Callahan Henry. She is a New York Times and USA Today bestselling author of sixteen novels, a podcast host, and a co-creator and host of the popular show, Friends & Fiction. Prior to becoming an author, she was a Pediatric Clinical Nurse Specialist with a fascination for memory and focused on neurology and brain trauma. Her novel, The Favorite Daughter, joined our collection of carefully vetted books in November 2019.

“Memory,” she says, “haunts all my work but takes center stage in this one. Who do we become without those memories?”

Patti is the recipient of The Christy Award 2019 Winner “Book of the Year”; The Harper Lee Distinguished Writer of the Year for 2020, and the Alabama Library Association Book of the Year for 2019. She is also a contributor to the monthly life lesson essay column for Parade Magazine. A full-time author and mother of three, she now resides in both Mountain Brook, Alabama, and Bluffton, South Carolina with her husband.

In this podcast, we explore how our memories define us, if they do, the landscape of memory, and the concept of “ambiguous loss.”

After the Podcast

Read Patti’s AlzAuthors post: Memory is at the Heart of Patti Callahan Henry’s The Favorite Daughter

​Purchase The Favorite Daughter on Amazon. https://amzn.to/2D9TDnQ

Note: We are an Amazon Associate and may receive a small commission from book sales.

Connect with Patti

Website

Facebook

Instagram

Twitter

Watch Friends & Fiction on Wednesdays at 7 pm, EST

***

About the Podcast

Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.

We are a WCN Featured Podcast.

Proud to be on The Health Podcast Network.

Want to be on the podcast? Here’s what you need to know.

Thanks for listening.

AlzAuthors.com

Shop our Store

HFC Summer Series with AlzAuthors and Ruth Stevens, Author of Stage Seven, a Novel

1h 0m · Published 13 Jul 00:00

Welcome to the first in our 2022 Summer Series with HFC. We kicked off this season on June 14th with Ruth Stevens’ novel, Stage Seven. Christy Byrne Yates moderated.

About Ruth Stevens

Ruth Stevens believes in stories that make you laugh and cry. She says, “I like to write about the topics that worry me the most. Since I worry about a great many things, there is never a shortage of material. A resident of Torrance, California, Ruth is a former public relations professional (in New York and Los Angeles) and proud member of the Dramatists Guild of America and Women’s Fiction Writers Association.

Ruth has been writing professionally for her entire career—including hundreds of articles for magazines, newspapers, and journals—but creative writing is her passion. She took up this endeavor full-time after quitting her day job in 2017. At last count, she’s written two plays and three novels. In her spare time, she enjoys travel, hiking, wine tasting, hip hop, Broadway musicals, movies, leading a book club, and visiting her grandsons in Manhattan.Stage Sevenis her first novel.

About Christy Byrne Yates

Christy is the mother of two – now adult – children. She is an expert in navigating the challenges and opportunities in life including living in the “Sandwich Generation” (those raising children who are also caring for an aging parent), special needs education, and parenting.She incorporates meditation, mindfulness practices and Emotional Freedom Techniques (EFT) into her work along with other evidence-based practices to support growth, goal achievement and a pathway to living your best life now.In California she is a Licensed Educational Psychologist (LEP), an author, speaker, and coach. She is the author of Building a Legacy of Love: Thriving in the Sandwich Generationavailable on Amazon.

After the Podcast

Read Ruth’s AlzAuthors post: Ruth Stevens Pens Dementia Tale as a Play and a Novel: Stage Seven

PurchaseStage Sevenon Amazon

Note: We are an Amazon Associate and may receive a small commission from books sales.

Book Mentions

The Forgetting, David Shenk, available on Amazon

Connect with Ruth

Website

Facebook

Instagram

***

About the Podcast

Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.

We are a WCN Featured Podcast

Proud to be on The Health Podcast Network

Want to be on the podcast? Here’s what you need to know.

Thanks for listening.

AlzAuthors.com

Shop our Store

Four Authors Untangle When Dad Has Dementia

1h 6m · Published 30 Jun 10:00

Caring for a father with a dementia diagnosis brings to caregiving its own special set of circumstances and considerations. In this AlzAuthors Live! Virtual Q&A we explore these changes and challenges with four of our authors. Their stories will inspire and empower you on your own dementia journey with your dad.

This free virtual event was held onTuesday, June 7th, 2022. The video replay is available on our YouTube Channel.

Meet the Panelists

Andrea Couture: author ofEmbracing What Remains, a memoir

Andrea recently lost her beloved father, a renowned surgeon, to Alzheimer’s. She wrote about her family’s caregiving journey and is the first of our authors to write about caregiving during COVID.

Irene Olson: author ofRequiem for the Status Quo, a novel

Irene survived being an Alzheimer’s family caregiver twice: to her father and her sister-in law. Her goal in writingRequiemwas to encourage and educate others who might be called upon to take on the role of family caregiver.

Patti Davis: author ofThe Long GoodbyeandFloating in the Deep End: How Caregivers Can See Beyond Alzheimer’s, memoirs and caregiving guide

Patti is the daughter of President Ronald Reagan, who opened the world’s eyes to the disease when he disclosed his own diagnosis in hisLetter to Americain 1994.

Tanya Ward Goodman, author ofLeaving Tinkertown, a memoir

Tanya grew up in the mountains of New Mexico in a roadside attraction built by her father. Throughout his Alzheimer’s journey she documented their experience with photographs and journaling.

After the Podcast

Other books mentioned:

Tami Anastasia, Essential Strategies for the Dementia Caregiver

Dave Meurer, New Every Day

Joy Johnston, The Reluctant Caregiver

Note: We are an Amazon Associate and may receive a small commission from books sales.

***

About the Podcast

Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.

We are a WCN Featured Podcast.

Proud to be on The Health Podcast Network.

Want to be on the podcast? Here’s what you need to know.

Thanks for listening.

AlzAuthors.com

Shop our Store

Martin Schreiber Untangles His Two Elaines: Caring for a Wife with Alzheimer's

54m · Published 27 Jun 11:19

“If there’s one thing worse than Alzheimer’s, it’s ignorance of the disease,” says Martin Schreiber, author of My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver, where he tells the story of his caregiving journey with his wife, who recently succumbed to her illness. Written with Milwaukee author Cathy Breitenbucher, the book was recognized by Caring.com as one of its Best Caregiving Books of 2017.Initially self-published, it was recently published by Harper Horizon.

Martin is the former governor of Wisconsin and an award-winning crusader for Alzheimer’s caregivers and persons with dementia. His work on behalf of older citizens dates back decades to his 16 years in public service as a state senator, lieutenant governor and governor where he focused on improved quality for nursing home care and development of the in-home Community Care Organization. He went on to become a successful insurance executive and publisher before he started his own government relations firm in 1988.

Prior to writing My Two Elaines – and while he still cared for his wife at home – Martin helped the Alzheimer’s Association launch Operation: Stronger Together. The multi-year awareness program initiated in 2015 has helped the Southeastern Wisconsin Chapter connect record numbers of families to education and resources that are vital to successful caregiving. He also collaborated with Wisconsin’s state government and business groups to help create the Dementia-Friendly Employers Toolkit, which is used by human resources departments and employee assistance programs. Such initiatives have led to Schreiber being recognized with awards from the Alzheimer’s Association and other organizations.

Martin attended Valparaiso University and the University of Wisconsin–Milwaukee, and earned a doctorate of law from Marquette University.

He and Elaine are the parents of four children, Kathryn Lyon, Martin Schreiber, Kristine Haas, and Matt Schreiber. They have 13 grandchildren and five great-grandchildren.

In this episode, we discuss the all-around ignorance surrounding dementia, Marty’s special message to men caring for their wives, the value of therapeutic fibbing and redirection, and the realities of moving a spouse into assisted living.

***

After the Podcast

Connect with Martin Schreiber

Website

Facebook

YouTube

Read Martin’s AlzAuthors post:

Purchase My Two Elaines on Amazon.

Note: We are an Amazon Associate and may receive a small commission from books sales.

***

About the Podcast

Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.

We are a WCN Featured Podcast.

Proud to be on The Health Podcast Network.

Want to be on the podcast? Here’s what you need to know.

Thanks for listening.

AlzAuthors.com

Shop our Store

AlzAuthors Untangles Custom Caregiver Collections

49m · Published 20 Jun 10:00

Join the AlzAuthors team as we discuss the launch of our latest initiative, Custom Caregiver Collections. Managers Jean Lee, a co-founder, Ann Campanella, and Susan Landeis, and author Paulette Sharkey join host Marianne Sciucco to discuss the beautifully crafted table top wooden bookshelves holding a collection of approximately 15 to 18 books about Alzheimer’s and dementia, to support our goal of providing real books to real people in real places.

With more than 300 quality, carefully vetted books written from personal dementia experience in the AlzAuthors Bookstore, we are perfectly positioned to offer customized collections of memoirs, novels, caregiving guides, children’s books and more.

Custom Caregiver Collectionsare suited for Senior Care Communities, doctors’ offices, in-home care organizations, senior centers, memory cafes and professional or personal libraries.When placed together, these books take on a vibrant life of their own. Each book, each journey, represents years, if not decades, of shared vulnerability, revealed as a beautiful garden of healing for others.

Our gratitude goes out to our generous donor, Paulette Sharkey, who covered the costs of creating our first tenCustom Caregiver Collections.These collections serve as the prototype available to communities across the country.We are so thankful!

The first Custom Caregiver Collections have been presented to:

·Four locations in Ohio

·Two locations in North Carolina

·Michigan

·Minnesota

·Alabama

·Washington State

·California

For more information visit https://alzauthors.com/ccc/

Meet the guests

Ann Campanella, author of Motherhood: Lost and Found

Jean Lee, author of Alzheimer’s Daughter

Susan Landeis, author of In Search of Rainbows and Optimal Caregiving

Paulette Sharkey, author of A Doll for Grandma

Marianne Sciucco, author of Blue Hydrangeas, an Alzheimer's love story

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About the Podcast

Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.

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AlzAuthors: Untangling Alzheimer's & Dementia has 135 episodes in total of non- explicit content. Total playtime is 125:10:26. The language of the podcast is English. This podcast has been added on July 28th 2022. It might contain more episodes than the ones shown here. It was last updated on May 6th, 2024 18:10.

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