Caring Conversations

Warren Hebert and Denise shares their thoughts on how we can make good for good days when the bad days seem to be never-ending.  About Warren Warren Hebert, DNP, RN, CAE, is an alumnus of the Robert Wood Johnson Foundation’s Executive Nurse Fellows Program. Hebert is Chief Innovation Officer for a home health analytics company. He is also a family caregiver, home health nurse, nursing professor, and executive director of the HomeCare Association of Louisiana. Attaining his Doctor of Nursing Practice degree (DNP) in 2015, Hebert joined his alma mater, Loyola New Orleans, in 2016, as lead faculty for health policy, Care of Vulnerable and Aging populations, health care ethics, and he teaches doctoral students about systems change and innovation. Hebert has hosted the radio program/podcast, Family Caregiving, for seven years. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Sharon Hall will be joined by Rebekah Wilson, MSW, www.agingcarecoach.com for this podcast on connecting to those living with dementia. Can you connect to the person you married or a family member in a different way after diagnosis? Should you? Many care partners had a very rocky pre-diagnosis time. Some dealt with firings over inappropriate behavior, some with affairs, some with loss of a life savings, some with arrests, gambling, drinking, and reckless behavior and even violence. Some dealt with law suits over auto accidents, sexual harrasment, shoplifting and other legal issues. How do you heal those awful wounds of betrayal? Can you just "shut off" the negative feelings and accept these issues were driven by a dying brain? Many people struggle to "love" the person they care for after they caused devastation in their lives. We will discuss what love means before and after diagnosis and how it might change. We will talk about how you can survive and even thrive, even after events that broke you in ways that seemed irreperable. We will talk about surviving and thriving during this diagnosis. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Rachel has been the primary caregiver for her grandmother for three years, and has used the knowledge and experiences gained over the past twelve years building a career helping disabilities at the individual, organizational, and systems levels to help her grandma have a good life and age in place. She also cared for her dear friend, Calvin, who died last year. Calvin’s death changed Rachel’s perspective on how she wanted to live. She now lives to help and support fellow family caregivers. To learn more about Rachel, visit her website, https://takingcareofgrandma.com. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Ellen Rogin, our wealthness expert, helps us form a story about our money that works. Ellen wrote the New York Times bestseller on turning your vision into reality, Picture Your Prosperity. She’s an acclaimed speaker, TEDx presenter, blogger, a 20-year veteran of the financial services industry, and a Certified Financial Planner®. Ellen’s appeared on CNBC’s Nightly Business Report, ABC News, and PBS, and has been quoted in The New York Times, Money, Time, Forbes, The Huffington Post, US News & World Report, the Chicago Tribune, and Crain’s Chicago Business. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Through her company, Kikupal, Naomi is on a mission to change the way we give and receive help. Naomi launched her company after caring for her husband, Greg, while she managed her career and raised their two young children. Naomi is changing the way we support caregivers in the most significant way -- by helping them delegate daily tasks. On average, caregivers spend 13 days a month on tasks such as shopping, food preparation, housekeeping, laundry, transportation, and giving medication. By delegating these tasks, a family caregiver can use time more effectivey on what matters most. Kikupal helps family and friends gift helpful services by purchasing KikuPoints, which can be redeemed to help the family caregiver with meals, house cleaning, and more. For more information, visit https://www.kikupal.com. --- Send in a voice message: https://anchor.fm/caring-conversations/message

My guest, Warren Hebert, and I share our thoughts about how to effectively communicate our stress. About Warren Warren Hebert, DNP, RN, CAE, is an alumnus of the Robert Wood Johnson Foundation’s Executive Nurse Fellows Program. Hebert is Chief Innovation Officer for a home health analytics company. He is also a family caregiver, home health nurse, nursing professor, and executive director of the HomeCare Association of Louisiana. Attaining his Doctor of Nursing Practice degree (DNP) in 2015, Hebert joined his alma mater, Loyola New Orleans, in 2016, as lead faculty for health policy, Care of Vulnerable and Aging populations, health care ethics, and he teaches doctoral students about systems change and innovation. Hebert has hosted the radio program/podcast, Family Caregiving, for seven years. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Sharon and Tia Powell, MD will discuss bringing joy into dementia caregiving. There is a lot of life between diagnosis and end stages and we need to live with joy. Sharon Hall cares for her mother and her husband. Her husband has FTD and lives at home. Sharon is an active advocate for FTD and those families living with the diagnosis. Dr. Tia Powell directs the Center for Bioethics and Masters' in Bioethics at Montefiore Health Systems and Albert Einstein College of Medicine. She holds the Shoshanah Trachtenberg Frackman chair in biomedical ethics and is Professor of Epidemiology and Psychiatry. Her bioethics scholarship focuses on dementia, public health policy, end of life care, and bioethics education. She served four years as Executive Director of the New York State Task Force on Life and the Law, the state bioethics commission. She has worked with the National Academies of Medicine on many projects, and served as an advisor to the CDC, and to Health and Human Services and its National Alzheimer's Project Act. She is frequently invited to speak at professional meetings (APA, ASBH, AAIC) at medical schools (Albert Einstein, Columbia, Cornell, Harvard, NYU, Yale), and colleges (Vassar, Princeton). She is a board-certified psychiatrist and Fellow of the New York Academy of Medicine, the American Psychiatric Association and The Hastings Center. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Shawn, who cares for her husband, launched a non-profit called Caregivers on the Homefront. Through her non-profit, Shawn leads Caregiver Mental Health and Wellness Restorative Weekends. "One of the things that we teach in our restorative weekends is how caregiving is a role that we play," Shawn says. "It is NOT our identity. When we lose our identity that is when the stress of caregiving can step in a wreak havoc on our lives. It is a hard enough journey in itself. We must find a way to not lose ourselves in the process." Read more of Shawn's story here: https://www.caregiving.com/ncc19/cva-shawn-moore/. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Monika Gross, a 2019 Caregiving Visionary Award Winner, developed The Poise Project to help family caregivers build their resilience. Monika joins us to share her vision for supporting family caregivers around the world.  You can learn more about Monika through her website, www.thepoiseproject.org. --- Send in a voice message: https://anchor.fm/caring-conversations/message

On World Alzheimer’s Day 2016, Julie Fleming launched The Purple Sherpa, a nonprofit organization that’s designed to educate, encourage, and support dementia family caregivers. Today there are 65,600 followers on Facebook, almost 4100 members in the online closed support group, and almost 450 members in the closed The Purple Sherpa Grief Support Group. Julie described her seven-year caregiving experience for her father as “the most exhausting, frightening, and loving experience I’ve ever had.” Learn more about Julie's story and her work. --- Send in a voice message: https://anchor.fm/caring-conversations/message