Take a Pain Check

In this week's episode of Take a Pain Check, Carin Lin joins as a guest to share her journey as a parent of a child with Kawasaki Disease (KD), focusing on her son Isaiah's experience. Carin recounts Isaiah's diagnosis story, shedding light on the symptoms that led them to seek medical attention and the challenges they faced during the diagnosis process. The discussion delves into what Kawasaki Disease is, its symptoms, and how it presents itself in children like Isaiah. Carin shares her advocacy journey, emphasizing the importance of pushing for a diagnosis and educating oneself about the disease after diagnosis. Isaiah's treatment journey, including medications and major surgeries like double bypass surgery, is explored. Carin discusses preparation, the recovery process, and her role in supporting Isaiah. The lifestyle adjustments Isaiah has made and the accommodations needed, especially in school and extracurricular activities, are discussed, highlighting the importance of family support. Carin talks about her involvement in founding Kawasaki Disease Canada is explored, along with the organization's mission and the changes observed in KD recognition over time. Don't forget to like, comment, and subscribe for more insightful episodes. Join our peer support group here for this month's session in April: https://us02web.zoom.us/meeting/regis... Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠/takeapaincheck_ Tiktok: ⁠https://www.tiktok.com/@takeapainchec... Facebook: /takeapaincheck LinkedIn: /take-a-pain-check Carin's socials Facebook: /kawasakidiseasecanada /isaiahskdjourney Twitter: @kawasakidiscan @IsaiahsJourney Instagram: @kawasakidiseasecanada @carinlin17 LinkedIn: Carin Lin, Kawasaki Disease Canada Youtube: @kawasakidiseasecanada345 Growing Pains, Copyright, 2018, Alessia Cara

Welcome back to this week's episode of Take a Pain Check! Today, I'm thrilled to have Delane Linkiewich with us, sharing her journey with chronic pain and the incredible insights she's gained along the way. Delane opens up about her experiences, from the car accident that started it all to the psycho-social impacts she's navigated. We delve into the various physical therapies she's tried, her medication regimen, and how she managed treatment during the challenging times of the pandemic. Growing up with chronic pain wasn't easy, and Delane shares how she had to step back from activities at times. She also sheds light on misconceptions about chronic pain and her time in the clinic until she transitioned to adult care. As a passionate advocate, Delane discusses her involvement in research, including her master's work on peer support in pediatric chronic pain. Learn about her initiatives with the Chronic Pain Network, her role in the 'Putting the Pieces Together Conference,' and valuable tips she offers for those living with chronic pain. Don't forget to like, comment, and subscribe for more insightful episodes. Join our peer support group here for this month's session in April: https://us02web.zoom.us/meeting/register/tZUlf-itrzwpHdHeWxl0qYTy7NYOptjjt8Qh#/registration Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠ https://www.instagram.com/takeapaincheck_/ X: ⁠ https://twitter.com/takeapaincheck Tiktok: ⁠ https://twitter.com/takeapaincheck Facebook: https://www.facebook.com/TakeaPainCheck/ LinkedIn: https://www.linkedin.com/company/take-a-pain-check Delane's socials: Email: [email protected] X: https://twitter.com/delanelinkie Growing Pains, Copyright, 2018, Alessia Cara #chronicpain #peersupport #caraccident #pain #invisibledisability #phd

In this week's episode of Take a Pain Check, we welcome Ayesha as our special guest, sharing her incredible journey of diagnosis, advocacy, and touching moments of kindness. Ayesha recounts her initial symptoms that led her to seek medical help, navigating a complex medication regimen, and the ups and downs of her health journey. She reflects on her determination during her undergraduate years, the challenges of planning a wedding while managing her health, and a difficult experience in the emergency room. Ayesha also shares her memorable experience attending Taylor Swift's Eras tour, even in a wheelchair. During the episode, Ayesha updates us on her current health status, medication routine, and mental well-being, offering hope and valuable insights to listeners. She shares Taylor Swift's response to her Tumblr post, and how she met her in person. The conversation shifts to Ayesha's TikTok journey, where she discusses how she creates 'Get Ready with Me' videos, and she discusses her experience living with lupus, highlighting moments of inspiration and the positive impact on her community. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠https://www.instagram.com/takeapaincheck_/ X: ⁠https://twitter.com/takeapaincheck Tiktok: ⁠https://www.tiktok.com/@takeapainchec...⁠ Ayesha's socials: Tiktok: @ayeshaakhurram Instagram: @ayeshakhurram Growing Pains, Copyright, 2018, Alessia Cara

In this episode of Take a Pain Check podcast, we delve into the life of Alexander Levine, unpacking his journey with Ankylosing Spondylitis (AS) from diagnosis to shoulder surgery and beyond. Alex shares the story of his diagnosis, detailing life before AS and the challenges he faced in his career, particularly in the health and fitness industry. We explore the knowledge gap between fitness and AS, how his perspective on fitness shifted post-diagnosis, and the impact of physical therapy on his symptoms. Alex also opens up about his shoulder surgery, discussing the pain and recovery process. He sheds light on how friendships and relationships evolved, the support he received from loved ones, and the pivotal role of the chronic illness community. He also talks about managing a family and newborn with a diagnosis. As a fitness enthusiast and owner of a virtual personal training business, Alex shares insights into his unique training style tailored for those with AS, addressing the mental blocks and challenges that come with chronic illness. The episode wraps up with valuable advice from Alex on getting started in the fitness industry with a chronic condition and changing mindsets for youth already interested in fitness. Sign up for our first joint chat rheum session to meet others with rheumatic diseases this month:https://us02web.zoom.us/meeting/register/tZMrduGuqj0uHdDgcBicDuG0TBjtvcnGwGkI#/registration Join our campaign at a landmark near you for World Young Rheumatic Disease Day: https://www.takeapaincheck.com/light-it-blue Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapaincheck_/ X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en Alex's socials: Youtube: @AlexLevineFitness Instagram: @alexlevinefitness Tiktok: @alexlevinefitness Growing Pains, Copyright, 2018, Alessia Cara

In this episode, we're honored to have Jeanine V McGuire sharing her incredible journey with JRA (Juvenile Rheumatoid Arthritis). From her diagnosis story spanning two years to navigating high school with accommodations, shifting friendship dynamics, and excelling as a student-athlete, Jeanine's resilience shines through. She dives into the challenges of managing arthritis during college, both living independently and staying at home. We explore her dedication to fitness, adapting training routines, and maintaining a social life. Jeanine shares valuable insights on transitioning to adult healthcare, telling her partner she has arthritis, getting involved in the chronic disease community, and her impactful roles with the Arthritis Foundation, including the PA race planning committee and the Ease of Use Box campaign. Tune in for advice on managing chronic conditions while pursuing your passions, maintaining a positive mindset, and insights into Jeanine's worries for the future. Sign up for our first joint chat rheum session to meet others with rheumatic diseases this month: https://us02web.zoom.us/meeting/regis... Our socials: Website: https://www.takeapaincheck.com/ Instagram: /takeapaincheck_ Tiktok: /takeapainchec.. X: /takeapaincheck Jeanine's socials: @champion.of.yes and /jeanine.v.mcguire Growing Pains, Copyright, 2018, Alessia Cara

In this episode of Take a Pain Check, we delve into the experiences of Jillian Wickert, who has been living with Juvenile Idiopathic Arthritis (JIA) for the majority of her life. From her diagnosis story to navigating through various treatments and medications, Jillian shares her journey with candor and resilience. We explore the challenges she faced in school and the impact of her condition on her social life. Jillian also opens up about the psychological barriers she encountered and how she overcame them, shedding light on the need for understanding and support. As she discusses her thesis project centered around the question 'How are you doing, really?' Jillian offers valuable insights into what constitutes a neutral experience for individuals living with JIA. We uncover the nuances of Jillian's journey, gain valuable advice for those facing similar circumstances, and explore the significance of community engagement in the realm of chronic illness. Additionally, we delve into the exploration of alternative treatment options alongside medications, the interactions with people over a lifespan, and the delicate balance of when to share or withhold information about one's arthritis. Through the lens of trial and error, we navigate the complexities of managing chronic illness and finding the right path to wellness.

Sign up for our first joint chat rheum session to meet others with rheumatic diseases this month: https://us02web.zoom.us/meeting/register/tZElcO2tqD8qG9LiI_INsTT7kpGKyhsnKTNZ#/registrationOur socials:Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapaincheck_/Tiktok: https://www.tiktok.com/@takeapaincheck?lang=enX: https://twitter.com/takeapaincheckGrowing Pains, Copyright, 2018, Alessia Cara

In this week’s episode of Take a Pain Check, we delve into the journey of Rachel Gehue, who bravely shares her experiences living with JRA, Spherocytosis, anxiety, OCD, and depression. From the emotional impact of her diagnosis to the challenges faced in school, sports, and social life, Rachel unfolds a narrative of strength and perseverance. She discusses the medications that have played a crucial role in her journey, the supportive relationship with her rheumatologist, and the importance of a patient-centered approach. She discusses the highs and lows of her undergraduate experience, the impact on friendships, and her strategies for managing mental health. Lastly, we discussed Rachel’s advocacy work, from her active participation in the Walk for Arthritis to her role with Patient Partners in NL. Like and subscribe! Apply for our scholarship here: https://www.takeapaincheck.com/schola... Rachel's socials: @rachelgehue @rachelwithrheumatoid Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck​​​ Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara

On this week’s episode on Take a Pain Check, Kyle Brooks talks about his diagnosis journey and about navigating the challenges of JIA and psoriasis. From physio to a two-year wait for answers, Kyle shares his daily battles with symptoms and medications. We delve into the social aspect, addressing bullying, handling negative comments, and finding resilience. Kyle opens up about school life, securing accommodations, and fostering a positive relationship with his general practitioner. Not only that, this episode talks about contrasts in healthcare systems between England and Canada. Finally, we discuss Kyle’s involvement in awareness initiatives, from live streams to TikTok, and his passion for the arts which adds a unique perspective. Apply for our scholarship here: https://www.takeapaincheck.com/schola... Kyle's socials: Instagram: @kyle_b.idk TikTok: @teen.with.arthritis Youtube: @ChefJisoo Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck​​​ Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara

In this episode of Take a Pain Check, Isabel Dukes opens up about her personal journey dealing with JIA, Lupus, Antiphospholipid Antibody Syndrome, ADHD, and Dyslexia. She shares candid reflections on navigating the challenges of high school, dating in university, and the significant transition to adult life, including moving in with her partner. The episode delves into her medication journey and the evolving accommodations she has navigated since her youth. Isabel discusses the critical role of her support system during high school and the unique hurdles encountered in transitioning from pediatric to adult care. As an industrial designer, she discusses her commitment to accessibility. Not only that, she talks about her experience at arthritis camp, the @ArthritisSociety Walk, volunteering with Take a Pain Check and her active participation in the Make Rheum for Youth project by TAPC and @canadianarthritispatiental3234 . The episode concludes with practical advice on advocacy, emphasizing the importance of self-advocacy and community engagement for those navigating health challenges. Like and subscribe! Apply for our scholarship here: https://www.takeapaincheck.com/schola... Isabel's socials: Instagram: @isabel_dukes Linkedin: https://www.linkedin.com/in/isabel-du... Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck​​​ Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara

In this episode of Take a Pain Check, Alyssa discusses her journey in being involved in the treatment of osteoarthritis care. She discusses the knowledge gap in patient communication, the importance of a holistic approach, and practical advice on exercise for managing symptoms. Additionally, Alyssa also shares insights into physiotherapist appointments and highlights her initiative, “Keep the Adventure Alive,” aimed at helping those with osteoarthritis lead fulfilling lives. The episode explores the significance of exercise in managing symptoms and provides practical advice on safe muscle strengthening and relieving knee pain. Alyssa also shares insights into what patients can expect during physiotherapist appointments, the duration of sessions, and the personalized approach to care. The episode concludes by emphasizing the significance of Alyssa’s YouTube channel in spreading awareness and building a supportive community.

Like and subscribe!Apply for our scholarship here: https://www.takeapaincheck.com/scholarship

Alyssa's socials:Website: keeptheadventurealive.com

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Growing Pains, Copyright, 2018, Alessia Cara#osteoarthritis