Take a Pain Check

In this episode of Take a Pain Check, Isabel Dukes opens up about her personal journey dealing with JIA, Lupus, Antiphospholipid Antibody Syndrome, ADHD, and Dyslexia. She shares candid reflections on navigating the challenges of high school, dating in university, and the significant transition to adult life, including moving in with her partner. The episode delves into her medication journey and the evolving accommodations she has navigated since her youth. Isabel discusses the critical role of her support system during high school and the unique hurdles encountered in transitioning from pediatric to adult care. As an industrial designer, she discusses her commitment to accessibility. Not only that, she talks about her experience at arthritis camp, the @ArthritisSociety Walk, volunteering with Take a Pain Check and her active participation in the Make Rheum for Youth project by TAPC and @canadianarthritispatiental3234 . The episode concludes with practical advice on advocacy, emphasizing the importance of self-advocacy and community engagement for those navigating health challenges. Like and subscribe! Apply for our scholarship here: https://www.takeapaincheck.com/schola... Isabel's socials: Instagram: @isabel_dukes Linkedin: https://www.linkedin.com/in/isabel-du... Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck​​​ Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara

In this episode of Take a Pain Check, Alyssa discusses her journey in being involved in the treatment of osteoarthritis care. She discusses the knowledge gap in patient communication, the importance of a holistic approach, and practical advice on exercise for managing symptoms. Additionally, Alyssa also shares insights into physiotherapist appointments and highlights her initiative, “Keep the Adventure Alive,” aimed at helping those with osteoarthritis lead fulfilling lives. The episode explores the significance of exercise in managing symptoms and provides practical advice on safe muscle strengthening and relieving knee pain. Alyssa also shares insights into what patients can expect during physiotherapist appointments, the duration of sessions, and the personalized approach to care. The episode concludes by emphasizing the significance of Alyssa’s YouTube channel in spreading awareness and building a supportive community.

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Alyssa's socials:Website: keeptheadventurealive.com

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Growing Pains, Copyright, 2018, Alessia Cara#osteoarthritis

Join us on this week’s episode of Take a Pain Check as Brookie Zarb shares her journey with Psoriatic Arthritis (PsA). From the initial symptoms to facing healthcare practitioners, Brookie discusses her diagnosis, medication experiences, and their impact on her life. She explores how PsA influenced her high school years, friendships, and extracurricular activities. She dives into the dynamics of her family, navigating the emotional rollercoaster of sibling diagnoses. Brookie discusses the Australian healthcare system, her creative coping mechanisms during flares, and her role as a Take a Pain Check ambassador. Hear her valuable advice for those dealing with rheumatic diseases in high school and those hesitant about getting involved with organizations.

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Resources: https://msk.org.au/

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Instagram: @brookie.zarbarooni

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Growing Pains, Copyright, 2018, Alessia Cara

In this podcast episode, we delve into Dr. Anna Costello’s pathway to becoming a rheumatologist. She shares her initial interest in oncology and the reasons as to why her decision took her to rheumatology and pediatric medicine. She discusses her educational background, from her undergraduate years at Brown University to her medical school experience and the unique opportunities that paved the way to her current position at the Children’s Hospital of Philadelphia. Dr. Costello opens up about her decision to pursue a fellowship and the challenges of transitioning from the working world back into education, providing valuable insights into her daily life and how she manages her physical and mental health. The episode also delves into her research interests, particularly in addressing diagnostic delays in patients with Juvenile Idiopathic Arthritis (JIA) and her approach to ensuring accurate diagnoses within limited timeframes. Don't forget to subscribe to Take a Pain Check for updates! Anna's Socials X: @annatomiga Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck​​​ Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara

In this week's episode of "Take a Pain Check," we sit down with Laurie Proulx, who takes us on a journey through her life and experiences dealing with arthritis. Laurie discusses her early years, when arthritis seemed to be taking control of her life, and how she found solace and inspiration in the realms of piano, dance, and voice lessons. Diagnosed with arthritis in 1991, she sheds light on the limited treatment options available at the time, including her experience with gold therapy and crossing the border for medical care. Laurie's story unfolds as she saw the introduction of biologics enter in the field of rheumatology, and she emphasizes the importance of education on medication. Through eight surgeries, she shares her coping strategies for dealing with chronic pain and the role that Methotrexate played in her treatment journey. Laurie also delves into the therapeutic power of music and her personal journey with pregnancy, highlighting the reproductive health resources she has created and collaborated on. Tune in to gain insight into Laurie's inspiring journey and her resilience in the face of chronic pain.
Don't forget to subscribe to Take a Pain Check for updates!Laurie's Socials X: @ProulxLaurieInstagram: @capa_arthritisOur socials:Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck​​​ Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara#juvenilearthritis #chronicillness #juvenilearthritis #research #patientsbelike #arthritis #chronicpain

In this week's episode of Take a Pain Check, we dive deep into Maddie Nero's inspiring journey with Juvenile Idiopathic Arthritis. From the early symptoms and struggles with medical professionals to triumphing over bullying in school, Maddie's story is a testament to resilience. Join us as we explore her college life, her passion for pageantry, and her empowering initiative, the Self Care Club for people with disabilities who want to learn more about self care. Don't forget to subscribe to Take a Pain Check for updates! Maddie's Socials: @self._care._club @missmiearth Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck​​​ Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara

Join us on this week's episode on Take a Pain Check as Dawn Richards, diagnosed with rheumatoid arthritis, shares her incredible journey from diagnosis to clinical remission. She opens up about changing rheumatologists, managing methotrexate side effects, and the transformative impact of exercise. She discusses her life both as a researcher and being patient partner in research. Finally, she discusses her involvement with the Canadian Arthritis Network, CIHR IMHA and the Canadian Arthritis Patient Alliance. Be sure to like, subscribe and share this episode! https://arthritispatient.ca/tips-and-tricks-when-taking-methotrexate/ https://cihr-irsc.gc.ca/e/27297.html Dawn's socials: Twitter - @TO_dpr Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck​​​ Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara

In this episode, Natasha talks to Kohle Merry about his journey with osteoarthritis. From undergoing joint injections to a hip replacement at just 29, Kohle's resilience is evident. As an engineering grad with aspirations for physiotherapy school, his surgical timeline redirected him to a PhD candidate in rehab science. He discusses the hurdles younger adults encounter in a rehab as it is setup predominantly for seniors and delves into the emotional struggles of persistent pain. Drawing from his experiences as a patient, tech enthusiast, and researcher, Kohle talks about his drive and how he wants to be part of the intersection between healthcare, patient partner lens and technology. A marathoner at heart, Kohle shares how he modified his active regimen so that he could keep running. Dive into this story of perseverance, from marathons to medical battles, and learn about how to implement self-advocacy in health. Be sure to like, subscribe and share this episode! Kohle's socials: https://ca.linkedin.com/in/kohle-merry-01018b120 Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck​​​ Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara

In this week's episode, we dive deep into the world of occupational therapy with Lindsay DeLong. Lindsay's journey spans from her foundational education to her innovative initiatives in the OT profession, particularly her unique focus on medical equipment. Having worked in a rehabilitation hospital, she specialized in inpatient brain injury rehabilitation, offering a wealth of insights into the day-to-day life and challenges of an OT. Beyond her clinical work, Lindsay founded EquipMeOT, a pioneering business dedicated to providing tailored medical equipment solutions. As we explore the products that enhance accessibility in various sections of a home, Lindsay also sheds light on the digital side of her mission. With a strong presence on platforms like YouTube, where she recently showcased an electric recliner video, and Instagram, she discusses the nuances of staying updated with trends, the hurdles of online engagement, and the power of social media in broadening her impact. She also delves into specific tools like Dycem, cylindrical forms, Y-shaped pencil grips, and more invaluable tips for adaptive living. For aspiring OTs, patients, caregivers or those curious about balancing work and personal life, Lindsay's experiences and advice promise a unique blend of inspiration and enlightenment. YouTube Video Link: https://youtu.be/I8g24I2OQc8 Cane Company: https://www.neo-walk.com/ Lindsay's socials: @equipmeot (IG) youtube.com/@UCLdk42lFK6A-7Ub7cLQH00g Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck​​​ Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara

Join us on this week's episode featuring Navya Juneja, a university student and a patient partner living with Juvenile Idiopathic Arthritis. In this week's discussion, Navya candidly shares her journey, from the early symptoms to her recent diagnosis and the challenges of finding the right medications. Natasha and Navya delve into essential topics, such as university accommodations compared to high school, providing practical advice on how to request and access the necessary support. They also explore the transition of care from pediatric to adult rheumatology clinics, shedding light on the significance of continuity and tailored healthcare services for young adults like Navya. Beyond her medical journey, Navya passionately shares her love for dance and her involvement with Take a Pain Check and SickKids, revealing how individuals can thrive and find purpose even while managing a chronic illness.

Navya's Socials: Instagram: @navyaa_j LinkedIn: https://www.linkedin.com/in/navya-jun... Facebook: facebook.com/navyaajunejaa Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck​​​ Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara