Untold Stories: Life with a Severe Autoimmune Condition
by iHeartPodcasts
For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.
Copyright: 2024 iHeartMedia, Inc. © Any use of this intellectual property for text and data mining or computational analysis including as training material for artificial intelligence systems is strictly prohibited without express written consent from iHeartMedia
Episodes
Connecting to Care: The Importance of Self-Advocacy with MG
27m · PublishedNavigating life with myasthenia gravis, or MG, often begins with a long road to diagnosis. For disabled veteran Shawna, the search for answers to her debilitating symptoms took several years. With the highs and lows of assistance from Veterans Affairs, she learned to navigate the healthcare system and make her voice heard, all while maintaining a positive outlook on her life with MG. Together with her caregiver and husband, Justin, Shawna has helped inspire the greater MG community with their blog, In Sickness and Nevermind, and redefined success for her own MG journey.
See omnystudio.com/listener for privacy information.
Welcome to Untold Stories: Life with Myasthenia Gravis
2m · PublishedWith a rare neuromuscular condition like myasthenia gravis, or MG, everyone’s experience with the disease is unique and often filled with struggles and sacrifices. That’s why argenx has partnered with iHeartRadio to bring you “Untold Stories: Life with Myasthenia Gravis.” In each episode, host Martine Hackett will explore the lessons learned and obstacles overcome by real people living with MG and share their empowering perspectives. Listen every other week to find strength and inspiration in these stories from members of the MG community.
See omnystudio.com/listener for privacy information.
Untold Stories: Life with a Severe Autoimmune Condition has 12 episodes in total of non- explicit content. Total playtime is 5:07:25. The language of the podcast is English. This podcast has been added on December 24th 2023. It might contain more episodes than the ones shown here. It was last updated on May 5th, 2024 04:11.
