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English
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32:23

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CushingsHelp (Cushie Chats: Podcasts and Interviews with information and support for Cushing's pat

by Archive

Welcome to Cushing's Help and Support. Mary O'Connor (MaryO) is the founder of http://www.cushings-help.com . This site provides information, support, RSS feedsnews, and education for people with Cushing's (aka Cushies) or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. This website also deals with Thyroid Disorders, Addison's Disease, Adrenal Disorders, Cushing's Syndrome, Pituitary Disorders, Pituitary disease, Growth Hormone, Pheochromacytomas, Fibromyalgia, Chronic Fatigue Syndrome, Hormone and Gland Disorders, Conn's Disease, Hyperaldosteronism, High Blood Pressure, Hypertension, Diabetes, Sheehan's Syndrome, Men1, Acromegaly, Nelson's Syndrome, PCOS, Arthritis, Bipolar Disorder, Headaches, Autoimmune Diseases, PTU, Cortisol, ACTH, and Thyroid Antibodies. A Cushing's patient is often referred to as a Cushie.

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Episodes

Doc Karen, Pituitary Patient and Cushing's Advocate

32m · Published 02 Dec 16:00
Karen has been dealing with Cushing's since 2006.  She has had pituitary surgery and a BLA.  Since her surgeries, she has become an advocate for Cushing's patients and will be launching a new nonprofit organization soon.

Interview with Deborah

33m · Published 30 Mar 22:00
She writes in her bio: 


"I do not know where to begin. For many years I have been struggling with these symptoms. I have proximal weakness, intolerance to stress, blood pressure fluctuations, hyperpigmentation, reactive hypoglycemia, sweating, severe dehydration, very bad confusion, vision, memory problems, physical body changes (hump, bruises), carb intolerance, and inability to exercise.


My endocrinologist did a workup for Cushing's disease and the midnight saliva test was high. She brushed it off as "stress". I am seeing a doctor now that says I have POTS and Dysautonomia. My doctor says I have inappropriate adrenaline rushes.


My body is falling apart because I haven't found a doctor who will take my symptoms and test results serious. I would like to talk to others who are having trouble getting diagnosed and also to those who have gotten diagnosed who have a good doctor."

Fabiana, Pituitary Cushing's Recurrence Patient

32m · Published 21 Oct 22:00
Fabiana had transphenoidal surgery (pituitary) July 30th 2004.  

She had a recurrence after seven years of being Cushing's free.  A second pituitary surgery on 10/26/2011 was unsuccessful and she had a BLA.  

She is currently having daily radiation.

Rachel W, Pituitary Interview

32m · Published 03 Jun 22:00
Part of Rachel's bio: "It’s hard to say when my exact “journey” began with what we now know is Cushing’s Disease.  Both my Mom and my doctor believe I’ve had this for years, when I started having period problems, migraines and unexplained weight gain in high school.

I can safely say that I started really noticing/documenting this last round of health issues in the spring of 2007.  I can remember my first doctor’s visit regarding the onset of this in spring 2006, but the majority of my health issues really began a year later.  I’d always suffered from migraines, but only around my menstrual periods.  I took birth control to help with that, and it also helped regulate my periods for the majority of my adolescent and young adult life."

Michelle B (MichelleB), Cyclic Cushing's Interview

30m · Published 13 May 22:00
Michelle was recently diagnosed with cyclic Cushing's. She has had a diagnosis of PCOS since she was 17 years old.

She writes in her bio: "I just recently received the diagnosis of cyclic Cushing’s. I’m not really sure how long I have actually had Cushing’s because I have had a diagnosis of PCOS since I was 17 yrs. old ( I’m now the ripe young age of 33). However looking back through labs with my endocrinologist who I see every 6 months, my ACTH levels have been elevated for a bit over 1 yr. It was not until recently January of 2015- things were going terribly wrong.

Starting in January I started to feel genuinely unwell, on a regular basis. I cant really explain all my symptoms there were so many different sensations and feelings that were seemingly different daily. However the red flag was I was having blood pressure spikes from really high, to very low back to back. I never had any blood pressure issues so this was a concern that led me to see a cardiologist. Upon tons of testing the cardio MD felt that something was telling my otherwise very healthy heart to do this and I should see a endocrinologist. (thank goodness for him) I contacted my endo and let him know…. the testing began."

CushingsHelp (Cushie Chats: Podcasts and Interviews with information and support for Cushing's pat has 5 episodes in total of non- explicit content. Total playtime is 2:41:56. The language of the podcast is English. This podcast has been added on November 27th 2022. It might contain more episodes than the ones shown here. It was last updated on September 11th, 2023 12:20.

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